Myasthenia Gravis Foundation of America Global MG Patient Registry

Last updated: September 26, 2024
Sponsor: Myasthenia Gravis Foundation of America
Overall Status: Active - Recruiting

Phase

N/A

Condition

Myasthenia Gravis Generalised

Carcinoma

Polymyositis (Inflammatory Muscle Disease)

Treatment

N/A

Clinical Study ID

NCT06617741
X130401004
  • Ages > 18
  • All Genders

Study Summary

The goal of this observational study is to learn about the experiences of people living with Myasthenia Gravis (MG) in the United States. The main questions it aims to answer are:

  • How and when are people with MG diagnosed?

  • What are the most common symptoms associated with MG?

  • What treatments are being used to treat MG?

  • What are the impacts of MG on activities of daily living, employment and quality of life?

  • What are the experiences with exacerbation, hospitalization and healthcare access for people with MG? Participants will answer a survey to enroll in the study, and be invited to fill out an update survey twice a year.

Eligibility Criteria

Inclusion

Inclusion Criteria:

  • age over 18

  • positive MG diagnosis

Exclusion

Exclusion Criteria:

  • age under 18

  • misdiagnosed with MG

Study Design

Total Participants: 3800
Study Start date:
October 12, 2013
Estimated Completion Date:
September 19, 2029

Study Description

This is a longitudinal, observational, patient reported registry.

Connect with a study center

  • Myasthenia Gravis Foundation of America

    Westborough, Massachusetts 01581
    United States

    Active - Recruiting

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