Project AWARE 2.0 to Improve Awareness, Willingness and Ability for Research and Enrollment in Clinical Research

Last updated: December 20, 2024
Sponsor: Huntington Study Group
Overall Status: Active - Recruiting

Phase

N/A

Condition

Dyskinesias

Treatment

N/A

Clinical Study ID

NCT06343220
AWARE 2.0
  • Ages > 18
  • All Genders

Study Summary

The Project AWARE 2.0 Survey is intended to gain knowledge about the feelings, attitudes, and beliefs of HD family members, care partners and others affected by HD towards the way drug trials and observational studies are communicated and conducted.

Eligibility Criteria

Inclusion

Inclusion Criteria:

  • Participants must either have HD or be at risk for having HD

  • Participants must be 18 years of age or older

  • Participants must live in the United States

  • Inclusion of participants will not be based on race, gender, or ethnicity.

Exclusion

Exclusion Criteria:

Study Design

Total Participants: 600
Study Start date:
April 10, 2024
Estimated Completion Date:
December 31, 2025

Study Description

The Project AWARE 2.0 Survey will be offered to HD families via HSG's online platform called myHDstory®. The survey will obtain input and knowledge about their feelings, attitudes, and beliefs concerning clinical research and the process by which HD studies are communicated and conducted. Project AWARE 2.0 is intended to provide the HD research community with the insight and tools to help (a) improve prospective research participants' awareness, willingness, and ability to participate in clinical research for HD; and (b) design clinical studies and trials in the future.

Connect with a study center

  • Huntington Study Group

    Rochester, New York 14618
    United States

    Active - Recruiting

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