Development,Validity and Reliability of a Caregiver Version of the Breathlessness Beliefs Questionnaire

Last updated: March 18, 2025
Sponsor: Halic University
Overall Status: Completed

Phase

N/A

Condition

Lung Disease

Cystic Fibrosis

Treatment

N/A

Clinical Study ID

NCT06289972
HUvbayraktaroglu1
  • Ages 25-75
  • All Genders

Study Summary

The goal of this methodological study is to determine the reliability and validity of the The Breathlessness Beliefs Questionnaire Caregiver Version (BBQ-C) version in assessing dysfunctional breathlessness beliefs in caregivers of children with cystic fibrosis.

Eligibility Criteria

Inclusion

Inclusion Criteria:

  • To be between 25-75 years old,

  • To be literate in Turkish,

  • Being a mother, father or other caregiver of a child,

  • Voluntarily agreeing to participate in the study,

  • Be taking care of the child for at least one year

Exclusion

Exclusion Criteria:

  • Having cognitive impairment at a level that prevents cooperation with the scales,

  • Not living in the same household with a child with cystic fibrosis.

Study Design

Total Participants: 42
Study Start date:
February 20, 2024
Estimated Completion Date:
July 11, 2024

Study Description

Cystic fibrosis (CF) is an inherited disease characterized by pulmonary involvement. Children with CF may have obstructive lung disease and related dyspnea, which may progress to respiratory failure and mortality. Dyspnea may lead to activity limitation. Parents who take care of children with CF may be protective of their children's social environment for some reasons such as the risk of infection. The Breathlessness Beliefs Questionnaire (BBQ) is a Turkish validated scale developed to assess dysfunctional beliefs about dyspnea. Based on the idea that parents may develop dysfunctional dyspnea belief behavior in their children with CF, the aim of this study was to develop a caregiver version of the BBQ (The Breathlessness Beliefs Questionnaire Caregiver Version-BBQ-C) and to investigate the validity and reliability of the scale in assessing dysfunctional dyspnea beliefs in parents of children with CF.

Connect with a study center

  • Haliç University

    Istanbul, Eyup 34060
    Turkey

    Site Not Available

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