Development of a Culturally Tailored Resilience-building Intervention for Chinese American's Advance Care Planning Discussions

Last updated: January 17, 2025
Sponsor: University of Illinois at Chicago
Overall Status: Active - Recruiting

Phase

N/A

Condition

Neoplasms

Treatment

Culturally tailored resilience-building intervention

Clinical Study ID

NCT06247215
2023-0354
P50MD017349
  • Ages 18-80
  • All Genders

Study Summary

Less than 15% of Chinese Americans complete advance directives. That is less than half of the 37% completion rate in the US general population. This disparity in the use of advance care planning between White Americans and Chinese Americans may extend to disparities in end-of-life care. To address such disparities in end-of-life care, we will develop and assess the acceptability of a culturally tailored resilience-building intervention to help Chinese Americans with cancer or heart disease and their family caregivers engage in advance care planning discussions.

Eligibility Criteria

Inclusion

Inclusion criteria for patient participants:

  • Age ≥ 18 years of age

  • Having a cancer diagnosis or a heart failure diagnosis documented in the electronic medical record

  • Being able to read and respond to questions in English or Mandarin

  • Having a family caregiver who is responsible for the care and willing to participate in the study

  • Being of non-Hispanic Asian race/ethnicity

Exclusion criteria for patient participants:

  • Having cognitive impairment per a Short Portable Mental Status Questionnaire with more than 3 errors

  • Having received heart transplantation or a left ventricular assist device • Having completed an advance directive

  • Being born in the US

Inclusion criteria for identified family caregivers:

  • Age ≥ 18 years

  • Being able to read and respond to questions in English or Mandarin

  • Being identified by the patient as a family caregiver

Study Design

Total Participants: 36
Treatment Group(s): 1
Primary Treatment: Culturally tailored resilience-building intervention
Phase:
Study Start date:
November 08, 2023
Estimated Completion Date:
June 30, 2025

Study Description

The overall objective of this cross-sectional pilot study is to develop a culturally tailored resilience-building intervention for Chinese Americans with cancer or heart disease in Chicago. A qualitative analysis of semi-structured interviews will be conducted to identify how religious leaders addressed death-related topics with Chinese Americans with cancer or heart disease in Chicago. In addition, a usability test of a resilience-building intervention prototype will be conducted to to understand the feasibility and acceptability among 18 pairs of Chinese Americans and their family caregivers (9 pairs with cancer and 9 pairs with heart disease).

Connect with a study center

  • University of Illinois Chicago

    Chicago, Illinois 60607
    United States

    Active - Recruiting

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