Building Resilience for Advance Care Planning (ACP) in Chinese Americans

Last updated: January 27, 2026
Sponsor: University of Illinois at Chicago
Overall Status: Completed

Phase

N/A

Condition

Neoplasms

Treatment

Culturally tailored resilience-building intervention

Chinese Americans with end-of-life care discussions

Religious leaders

Clinical Study ID

NCT06247215
2023-0354
P50MD017349
  • Ages 18-90
  • All Genders
  • Accepts Healthy Volunteers

Study Summary

The goal of this observational study is to learn about how Chinese Americans engage in advance care planning (ACP) discussions with their family caregivers.

The main questions it aims to answer are:

  1. How do religious leaders discuss advance care planning and death-related topics with Chinese Americans who are diagnosed with cancer or heart disease in Chicago?

  2. Are Chinese Americans living in Chicago ready to participate in ACP discussions with their family?

  3. What kind of support and resources are required to engage in end-of-life care discussions among Chinese Americans/immigrants living in Chicago?

  4. What do Chinese Americans with cancer, high blood pressure, or heart disease and their family members think about an ACP pamphlet made for Chinese Americans?

Participants will share their experience either through interviews or a survey.

Eligibility Criteria

Inclusion

Group 1

Inclusion criteria for religious leaders:

  • Age ≥ 18 years of age;

  • Having served as a chaplain, pastor, or monk at a health care setting or religiousorganization in Chicago;

  • Being able to read and respond to questions in English or Mandarin;

  • Having experience in having end-of-life discussions with Chinese Americans inChicago.

Exclusion

Exclusion criteria: Unwilling to provide consent.

Group 2

Inclusion criteria for Chinese Americans living in Chicago:

  • Age ≥ 18 years of age;

  • Identifying themselves as first- or second-generation Chinese Americans;

  • Being able to read and respond to questions in Mandarin or English.

Exclusion criteria: Unwilling to provide consent.

Group 3

Inclusion criteria for Chinese Americans with experience in end-of-life care discussions:

  • Age ≥ 18 years of age;

  • Identifying themselves as first- or second-generation Chinese Americans;

  • Having experience discussing end-of-life care decisions with others;

  • Being able to read, write, and respond to questions in either English or Mandarin.

Exclusion criteria: Unwilling to provide consent.

Group 4

Inclusion criteria for Chinese Americans with cancer, hypertension, or heart disease:

  • Age ≥ 18 years of age;

  • Self-identify themselves as first- or second-generation ChineseAmericans/immigrants;

  • Having a diagnosis of chronic diseases, such as cancer, hypertension, or heartdisease;

  • Being able to read and respond to questions in Mandarin;

  • Being of the non-Hispanic Asian race/ethnicity.

Exclusion criteria:

  • Having cognitive impairment per a Short Portable Mental Status Questionnaire withmore than 3 errors, or

  • Being born in the US.

Inclusion criteria for their family members:

  • Age ≥ 18 years of age;

  • Being able to read and respond to questions in Mandarin;

  • Having a family member who is self-identified as a first or second-generationChinese American/immigrant and has been diagnosed with chronic diseases, such ascancer, hypertension, or heart disease.

Exclusion criteria: Unwilling to provide consent.

Study Design

Total Participants: 125
Treatment Group(s): 5
Primary Treatment: Culturally tailored resilience-building intervention
Phase:
Study Start date:
November 08, 2023
Estimated Completion Date:
December 18, 2025

Study Description

The overall objective of this pilot study is to develop a culturally tailored resilience-building intervention for Chinese Americans with cancer or heart disease in Chicago. A qualitative analysis of semi-structured interviews will be conducted to identify how religious leaders addressed death-related topics with Chinese Americans with cancer, heart disease, or hypertension in Chicago. In addition, a mixed-method study using surveys and focus groups to understand the readiness, support, and resources of Chinese Americans living in Chicago to participate in ACP discussions with their family. Finally, a usability study will ask Chinese Americans with cancer, high blood pressure, or heart disease, and their family members, to share feedback on an ACP pamphlet designed for Chinese Americans.

Connect with a study center

  • University of Illinois Chicago

    Chicago, Illinois 60607
    United States

    Site Not Available

  • University of Illinois Chicago

    Chicago 4887398, Illinois 4896861 60607
    United States

    Site Not Available

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