HOme-Based Self-management and COgnitive Training CHanges Lives (HOBSCOTCH) - Multiple Sclerosis (MS)

Phase

N/A

Condition

Multiple Sclerosis

Memory Loss

Dementia

Treatment

HOme-Based Self-management and COgnitive Training CHanges lives (HOBSCOTCH)

Clinical Study ID

NCT06145737

STUDY02002107

Ages 20-65
All Genders

Study Summary

The goal of this pilot study is to assess the feasibility of adapting and delivering the existing home-based epilepsy self-management intervention, HOBSCOTCH, for people with multiple sclerosis (MS).

The main questions it aims to answer are:

Can the current HOBSCOTCH program be adapted for people with MS?
Will people with MS experience improved quality of life similar to that found in people with epilepsy after participating in the HOBSCOTCH program?

Participants will be asked to:

attend nine, one-hour virtual (online and/or by telephone) HOBSCOTCH-MS sessions with a one-on-one certified HOBSCOTCH-MS coach
complete a brief clinical questionnaire about their diagnosis of MS
complete four questionnaires before and after the HOBSCOTCH-MS sessions about their quality of life and about memory and thinking processes
keep a short daily diary about their MS symptoms and use of the self-management strategies taught in the HOBSCOTCH-MS program
complete a brief Satisfaction Survey after the entire HOBSCOTCH-MS program

Eligibility Criteria

Inclusion

Inclusion Criteria:

Age 20 - 65 years
Literate, English-speaking with grade 12 or equivalent in education
Self-reported diagnosis of MS
Self-reported cognitive/memory difficulties
Telephone and internet access

Exclusion

Exclusion Criteria:

Cognitive dysfunction that precludes participation in giving informed consent
Significant visual impairment precluding reading or writing
No reliable telephone or internet access
Acute psychiatric illness
History of progressive neurodegenerative disease (dementia)

Study Design