This is a multi-centre centre study with University of Leicester and DeMontfort
University being research sites. NHS organisations will be PIC sites where participants
will be identified from. No medical data or access to patient medical records will be
made. A PIC mNCA will be in place with NHS organisations.
For the design of the study, the investigators will adopt a double-blinded randomised
clinical trial. This means that patients will not know their group allocation and the
research associate that will be analysing the data will also not know what treatment the
patient received.
Participants will be allocated into either group 1 or 2. Participants in both groups will
both perform the exergame rehabilitation. The exergame, delivered in virtual reality,
involves travelling down a road (to give optic flow) whilst dodging balls that move
towards the participant by either shifting their body either to the left or right.
Patients are also be instructed to stand still and catch stars that appear, and these
will be used to score points and are associated with reward, ensuring motivation.
This exergame has been specifically designed to combine aspects of movement and balance
control, body position, aerobic fitness, strengthening of core muscles and elements of
co-ordination and speed.
The difference between the two groups will be the neuro-feedback provided during the
performance of the exercise game. That is, group 1 will receive real feedback of brain
activity whilst group 2 will receive a placebo which is called SHAM feedback. This
corresponds to a random recording that has no association/correlation with on-going brain
(EEG) activity. All participants will be randomly assigned a unique key code via a random
computer generator, this will be facilitated by the Data Monitoring and Ethics committee.
The research technician, that will perform the analysis of the data, will not be privy to
particular intervention of interest. After the random allocation, but before the
intervention, all participants will receive a familiarisation procedure for their
allocation. Once the participants have successfully undergone the eligibility screening
(see section below for details), participants will be randomly allocated to one of two
groups. The research team will then conduct the familiarisation sessions before
proceeding to the pre-intervention assessment (limit of stability at baseline). This will
be followed by the 12-week training program (that requires attendance at 30 1/2hr
sessions over the course of three months. This will be followed by the 12 week (end of
program) post-intervention assessment to measure the limit of stability, and a further
single follow-up at 6 months to asses for long-term retention of any benefits. The
12-week post-intervention testing sessions will occur within 72 hours, but no less than
24 hours following the preceding training session. For the Pre-and Post- assessments:
this will include the : (i) the Limits of Stability test, (ii) Sensory Organisation Test,
(iii) Parkinson's Disease Questionnaire, (iv) Berg Balance Scale, (v) Section III of
UPDRS, (vi) mBEST, (vii) 6 Metre WalkTest, (viii) 4 Square Step Test, and (ix) the Daily
Activities Questionnaire. All of the aforementioned measures are openly available and do
not require any licenses/permission to use. Accordingly, there will not be any need to
share data with the license holders.
VISIT 1:
In the first visit the research team will firstly ensure that the PLwP meet the
eligibility criteria and that none of the exclusion criteria apply. Only those eligible
will be randomly allocated to one or two groups, and the research team will measure using
posturography and walking assessments to obtain a baseline balance score. The research
team will also complete questionnaires, including the Parkinson's Disease Questionnaire,
Berg Balance Scale, Section III of the UPDRS, and Daily Activities Questionnaires. The
research team will also take a brief medical history. This initial visit will take place
at the balance testing laboratory at DeMonfort University.
12 WEEK TRAINING PROGRAMME: During the 12-week training programme, participants will be
asked to attend the balance laboratory at the University of Leicester, where either the
exergame activity with feedback from brain activity or no feedback will be performed.
These training sessions will last half an hour in total, and it is expected patients to
complete 5 sessions over the course of a 2- week period. An online booking system will be
used to manage the sessions. Participants will be allowed to miss a total of 6 sessions
in total across the whole of the 3-month intervention program. Missing any more that this
would compromise the integrity of the data.
POST INTERVENTION:
A post-intervention will be arranged immediately at the end of the training programme,
then again at 3 and 6 months respectively. During these post-interventions, measurements
will be taken from using the posturography and walking assessments to obtain a baseline
balance score. Questionnaires will be completed, including the Parkinson's Disease
Questionnaire, Berg Balance Scale, Section III of the UPDRS, and Daily Activities
Questionnaires. A brief medical history will be taken again. These visits will take place
at the balance testing laboratory at DeMonfort University.
INTERVIEWFor the optional part of the study, an interview will be arranged to take the
patients' and Carers views on the accessibility and tolerability of these interventions,
these will take place roughly 2 weeks at the end of the final training session. An
encrypted voice recorder will be used. Participant ID will be mentioned at the beginning
of the recording so that participants remain anonymous. Recordings will be stored in a
secure environment at the University before the recordings are transferred to university
computers. Recordings will be immediately deleted as soon as the recordings have been
transferred. The research team or an external transcribing company (a confidentiality
agree will be in place), will transcribe the recordings for analysing.