FARD (RaDiCo Cohort) (RaDiCo-FARD)

Inclusion criteria :

• adults or children with a confirmed diagnosis of one of the 9 following rare skin disease: Inherited epidermolysis bullosa, Ichthyosis, Ectodermal dysplasia, Incontinetia Pigmenti, Neurofibromatosis type 1, Albinism, Pemphigus, Mucous membrane pemphigoid or Palmoplantar keratoderma.

• prevalent or incident and followed in one the reference/competence centers of the FIMARAD healthcare network,

• able to understand a survey (for child, survey should be understood by parents),

• having given their signed consent to participate to the cohort RaDiCo-FARD (parents' consent for child).

Non-inclusion criteria :

• Patients, for whom regular care follow-up is not feasible with the FIMARAD healthcare network sites,

• Unconfirmed diagnosis (according to criteria for each disease),

• Patients (and/or parents) not able to understand a survey

• Patients (and/or parents) not having given their signed consent to participate to the study