Partnership in Safeguarding People With Dementia From Primary and Social Care Perspectives

Last updated: May 22, 2023
Sponsor: University of Manchester
Overall Status: Active - Recruiting

Phase

N/A

Condition

Weight Loss

Dementia

Diet And Nutrition

Treatment

Not applicable as not an intervention - HCP's

Not applicable as not an intervention - PLwD and family/carers

Clinical Study ID

NCT05883527
IRAS ID: 319897
  • Ages > 18
  • All Genders
  • Accepts Healthy Volunteers

Study Summary

"Adult safeguarding is everyone's responsibility". The Care Act 2014 makes safeguarding a legal duty. It provides local authorities and other agencies in England with a responsibility to protect adults with care and support needs from abuse and neglect. This is done most effectively when all relevant agencies work together. This is particularly important for people living with dementia, as they are at higher risk of abuse or neglect. Such abuse is most common in their own homes and care settings. Primary and social care professionals are likely to have regular contacts with older people, hence have opportunities for early identification and prevention of abuse. However, little is known about how primary care practitioners work in partnership with social care and other agencies to investigate and manage abuse.

  Aims:

  This project will outline how health professionals in primary care settings understand and
  respond to abuse and what their understandings of safeguarding law and policy are. It will
  also identify how social services departments assess and manage referrals relating to people
  living with dementia in primary care settings. Furthermore, the study will analyse the
  experiences of people with dementia and families who are at the centre of safeguarding

  Methods:

  This study has three phases. In phase 1, the investigators will synthesise current research
  and practice evidence to develop a theory of safeguarding conceptualisation and process. In
  phase 2, the investigators will analyse national statistics on safeguarding (NHS digital
  dataset), ageing and dementia data (English Longitudinal Study of Ageing) to understand
  patterns of reporting and how they vary across location, gender, ethnicity and time period.
  In phase 3, the investigators will interview GPs, social workers, safeguarding leads,
  independent advocates, people with dementia, family members, support workers, carers and
  other professionals who make or receive referrals via primary care. As part of phase 3 group
  discussions will also be conducted, in which professionals will come together to share their
  experiences, and will identify approaches for preventing abuse and collaboration amongst
  relevant agencies. Phase 3 will inform the development of complex case studies, drawing on
  data from phases 1 and 2.

  Impact:

  This study will help develop practice guidance for professionals, to aid multi-agency
  collaboration in safeguarding cases specific to dementia. This will be developed in
  consultation with the PPIE (Patient and Public Involvement and Engagement) members and
  practitioners. Videos will also be produced and plain English versions of case studies of
  complex safeguarding scenarios and strategies in consultation with safeguarding leads, law
  experts, training providers and other key stakeholders. Experts by experience (working with,
  caring for or living with dementia), will be able to guide the team with cultural nuances and
  appropriateness to ensure that the material developed is sensitive to all populations. An
  info graph/pictograph displaying signs of abuse, staying safe and what to do, aimed at people
  with dementia and family will be compiled. The investigators will liaise with national
  safeguarding leads so that this information can be displayed in GP clinics. Furthermore, the
  investigators will contact social responsibility personnel for supermarkets and discuss the
  potentials of wider circulation for displaying this information in stores.
 

Eligibility Criteria

Inclusion

Inclusion Criteria:

  • Health and social care professionals:
  • GPs, Nurses, social workers, mental health professionals, support workers, IMCA (independent mental capacity advocates) and other health care professionals in GPsurgeries and integrated social care hubs with experience in facilitatingsafeguarding.
  • Safeguarding lead in GP surgeries, social care organisations and otherorganisations (advocacy agencies).
  • Professionals from third-sector organisations who have previously raisedsafeguarding concerns regarding adults living with Dementia Service users and carers/family:
  • People with dementia who have been involved in the safeguarding process, with mentalcapacity to consent.
  • Family members of people with dementia who have been previously involved in thesafeguarding process
  • Individuals who were involved in a safeguarding inquiry in the past, which is NOTongoing at the time of interview.

Exclusion

Exclusion Criteria:

  • Health and social care professionals at GP practices, social care organisations andthird sector organisations without experiences of safeguarding older adults andunwilling to participate in the study.
  • People with dementia who lack capacity to consent.
  • Individuals involved in an active and ongoing safeguarding inquiry.

Study Design

Total Participants: 50
Treatment Group(s): 2
Primary Treatment: Not applicable as not an intervention - HCP's
Phase:
Study Start date:
May 01, 2023
Estimated Completion Date:
March 31, 2024

Connect with a study center

  • CRN

    Leeds,
    United Kingdom

    Active - Recruiting

  • Leeds Local Authority

    Leeds,
    United Kingdom

    Site Not Available

  • CRN

    Manchester,
    United Kingdom

    Active - Recruiting

  • Greater Manchester Local Authority

    Manchester,
    United Kingdom

    Site Not Available

  • CRN

    Southport,
    United Kingdom

    Active - Recruiting

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