Leukemia and Lymphoma Society (LLS) Services Impact on Outcomes and Care

Last updated: February 18, 2026
Sponsor: University of Miami
Overall Status: Active - Recruiting

Phase

N/A

Condition

Lymphoma

Hematologic Neoplasms

Blood Cancer

Treatment

LLS Program

Clinical Study ID

NCT05745285
20220784
20220220
  • Ages > 18
  • All Genders

Study Summary

The purpose of this study is to learn about the impact that the services and programs provided by Blood Cancer United (formerly, The Leukemia and Lymphoma Society) have among patients with blood cancer, such as access to care, quality of life, and financial burden.

Eligibility Criteria

Inclusion

Inclusion Criteria:

  • Be diagnosed with, or have a recurrence of leukemia, lymphoma, myeloma,myelodysplastic syndromes (MDS), or myeloproliferative neoplasms (MPN).

  • Have received, be receiving, or be planning to receive primary or relapse treatmentfor leukemia, lymphoma, myeloma, myelodysplastic syndromes (MDS), ormyeloproliferative neoplasms (MPN) and meet at least one of the following criteria:

  • Be currently receiving treatment which started within the past 18 months OR

  • Be planning to start treatment within one month OR

  • Have received Bone Marrow Transplant or CAR-T cell therapy within the past 100days.

  • Not be currently participating in any LLS programs or services

  • Be willing to be followed for 6 months

  • Speak English or Spanish

Exclusion

Exclusion Criteria:

  • Are not diagnosed with, or have a recurrence of leukemia, lymphoma, myeloma,myelodysplastic syndromes (MDS), or myeloproliferative neoplasms (MPN)

  • Do not meet at least one of the following criteria if treated or planning to gettreated for leukemia, lymphoma, myeloma, myelodysplastic syndromes (MDS), ormyeloproliferative neoplasms (MPN):

  • Be currently receiving treatment which started within the past 18 months OR

  • Be planning to start treatment within one month OR

  • Have received Bone Marrow Transplant or CAR-T cell therapy within the past 100days.

  • Are currently participating in any LLS programs or services

  • Are not willing to be followed for 6 months

  • Do not speak English or Spanish.

Study Design

Total Participants: 400
Treatment Group(s): 1
Primary Treatment: LLS Program
Phase:
Study Start date:
February 04, 2025
Estimated Completion Date:
November 01, 2026

Connect with a study center

  • Sylvester Comprehensive Cancer Center

    Miami, Florida 33136
    United States

    Site Not Available

  • Sylvester Comprehensive Cancer Center

    Miami 4164138, Florida 4155751 33136
    United States

    Active - Recruiting

  • University of Chicago Comprehensive Cancer Center

    Chicago, Illinois 60637
    United States

    Site Not Available

  • University of Chicago Comprehensive Cancer Center

    Chicago 4887398, Illinois 4896861 60637
    United States

    Site Not Available

  • Mays Cancer Center at UT Health San Antonio

    San Antonio, Texas 78229
    United States

    Site Not Available

  • Mays Cancer Center at UT Health San Antonio

    San Antonio 4726206, Texas 4736286 78229
    United States

    Site Not Available

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