Registry for CADASIL

Last updated: November 10, 2024
Sponsor: University of Wisconsin, Madison
Overall Status: Active - Recruiting

Phase

N/A

Condition

Occlusions

Treatment

Registry

Clinical Study ID

NCT05567744
2022-0827
A535100
SMPH/NEUROLOGY/NEUROLOGY
Protocol Version 9/22/2022
  • Ages 18-90
  • All Genders
  • Accepts Healthy Volunteers

Study Summary

This study is being done in order to create a registry (list) of people interested in Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy (CADASIL) research. It may be that you have a family member or other loved one with CADASIL, or that you may have CADASIL or are at risk. Participation means that your name will be added to a list of people who will be invited to participate in future research studies on CADASIL. Participants must be 18 years or older, and will remain on the registry until they request to be removed.

Eligibility Criteria

Inclusion

Inclusion Criteria:

  • 18 years of age or older

  • have a loved one or a family member with CADASIL, or are at-risk for CADASILthemselves

Exclusion

Exclusion Criteria:

  • Under 18 years of age

Study Design

Total Participants: 2500
Treatment Group(s): 1
Primary Treatment: Registry
Phase:
Study Start date:
June 03, 2022
Estimated Completion Date:
October 31, 2027

Study Description

The purpose of this registry is to allow Dr. Jane Paulsen and her CADASIL research teams to contact individuals on the list who may fit a study's eligibility requirements. All individuals interested in CADASIL research who either have a family member or loved one, or are at risk themselves, are eligible to participate in this registry. Information collected as part of the registry will be used solely to determine potential participant's eligibility to participate research.

A patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves a predetermined scientific, clinical, or policy purpose(s).

Connect with a study center

  • University of Wisconsin

    Madison, Wisconsin 53705
    United States

    Active - Recruiting

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