Glioma Developmental and HyperActive Ras Tumor (DHART) Board

Last updated: June 25, 2025
Sponsor: Memorial Sloan Kettering Cancer Center
Overall Status: Active - Recruiting

Phase

N/A

Condition

Cancer

Brain Cancer

Astrocytoma

Treatment

N/A

Clinical Study ID

NCT05489783
22-199
  • Ages > 18
  • All Genders

Study Summary

This study will collect medical records, scan results, and complete surveys to create a registry about people with a neurofibromatosis type 1-associated brain tumor (NF1-associated glioma). A registry is a collection of health information about individuals, and it is usually focused on a specific diagnosis or condition.

This registry study will help the researchers learn more about the diagnosis, treatment, and quality of life of people with NF1-associated glioma. The researchers want to understand what happens as a result of different treatments for NF1-associated glioma and how these treatments and the disease itself affect people's lives over a period of time. Information collected during this study could affect how doctors diagnose, test, and treat NF1-associated glioma, and the study could help future patients with this type of cancer.

Eligibility Criteria

Inclusion

Inclusion Criteria:

  • Clinical diagnosis that meets NIH criteria for NF1 disease by either 1) documentedclinical record establishing NF1 or 2) self-reported with supported documentationupon medical record collection.

  • Willing to have historical and future NF1 related health records sent to registryfor review.

  • Radiologic or pathologically confirmed glioma.

  • Individuals ≥18 years of age on the date of informed consent.

Exclusion

Exclusion Criteria:

  • Unwillingness to sign informed consent.

  • No proficiency in English or Spanish as determined by the Investigator.

Study Design

Total Participants: 50
Study Start date:
July 29, 2022
Estimated Completion Date:
July 31, 2026

Connect with a study center

  • Memorial Sloan Kettering Basking Ridge (All Protocol Activities)

    Basking Ridge, New Jersey 07920
    United States

    Active - Recruiting

  • Memorial Sloan Kettering Monmouth (All protocol activities)

    Middletown, New Jersey 07748
    United States

    Active - Recruiting

  • Memorial Sloan Kettering Bergen (All Protocol Activities)

    Montvale, New Jersey 07645
    United States

    Active - Recruiting

  • Memorial Sloan Kettering Suffolk - Commack (All Protocol Activities)

    Commack, New York 11725
    United States

    Active - Recruiting

  • Memorial Sloan Kettering West Harrison (All Protocol Activities)

    Harrison, New York 10604
    United States

    Active - Recruiting

  • Memorial Sloan Kettering Cancer Center (All Protocol Activities)

    New York, New York 10065
    United States

    Active - Recruiting

  • Memorial Sloan Kettering Nassau (All Protocol Activities)

    Rockville Centre, New York 11570
    United States

    Active - Recruiting

  • Memorial Sloan Kettering West Harrison (All Protocol Activities)

    West Harrison, New York 10604
    United States

    Site Not Available

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