CIMR Neuromuscular Research Biobank

Phase

N/A

Condition

Muscular Dystrophy

Neurologic Disorders

Polymyositis (Inflammatory Muscle Disease)

Treatment

N/A

Clinical Study ID

NCT05434572

HM20021172

Ages < 75
All Genders
Accepts Healthy Volunteers

Study Summary

The purpose of this research repository is to collect, store, and share with other researchers any tissues that subjects with all types of neuromuscular disease are willing to donate. These samples will be stored at Virginia Commonwealth University (VCU) and will be used for future research with this population.

Eligibility Criteria

Inclusion

Inclusion Criteria:

Willing and able to give informed consent
Positive diagnosis or suspected diagnosis of neuromuscular disease, or
Family history of neuromuscular disease, or
Healthy volunteer
Age Neonates-75

Exclusion

Exclusion Criteria:

Unwilling to sign consent

Study Design

March 17, 2021

February 28, 2030

Study Description

The study involves collection of medical information about research participants and their families. No identifying information about family members will be collected. Research participants will be asked for any general knowledge they have related to possible neurological disorders.

Research participants are also given the opportunity to provide blood, skin cells, urine, saliva, fecal matter, muscle tissue, cells, DNA and/or RNA samples.

Before any study procedures take place, the informed consent form will be provided and reviewed with potential research participants in detail. Potential research participants will have an opportunity to ask additional questions before starting any study procedures.

Connect with a study center

Virginia Commonwealth University
Richmond, Virginia 23298
United States
Active - Recruiting

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