PVRI GoDeep Global Deep Phenotyping Meta-Registry for Pulmonary Hypertension

Last updated: April 1, 2025
Sponsor: University of Giessen
Overall Status: Active - Recruiting

Phase

N/A

Condition

Diabetes And Hypertension

Chest Pain

Williams Syndrome

Treatment

N/A

Clinical Study ID

NCT05329714
PVRIGoDeep
  • All Genders
  • Accepts Healthy Volunteers

Study Summary

PVRI-GoDeep is a PH Meta-Registry, run under the umbrella of the Pulmonary Vascular Research Institute (PVRI). It merges anonymized PH patient related data from various local registries around the world run under the responsibility of PVRI members. It will be operated under the auspices of the University of Giessen/Giessen PH center. Combining deep phenotyping with worldwide outreach, PVRI-GoDeep aims to offer insights into specific geographical and ethnical profiles of PH, to deepen the epidemiological, clinical and molecular understanding of this disease and to promote strategies for improved individualized treatment of PH patients.

Eligibility Criteria

Inclusion

Inclusion Criteria:

  • Clinical Diagnosis of Pulmonary Hypertension

Exclusion

Exclusion Criteria:

  • none

Study Design

Total Participants: 40000
Study Start date:
January 30, 2020
Estimated Completion Date:
January 30, 2055

Study Description

PVRI-GoDeep is a PH Meta-Registry, run under the umbrella of the Pulmonary Vascular Research Institute (PVRI). It merges anonymized PH patient related data from various local registries around the world run under the responsibility of PVRI members. It will be operated under the auspices of the University of Giessen/Giessen PH center.

Combining deep phenotyping with worldwide outreach, PVRI-GoDeep aims to offer insights into specific geographical and ethnical profiles of PH, to deepen the epidemiological, clinical and molecular understanding of this disease and to promote strategies for improved individualized treatment of PH patients.

The data provided by PVRI-GoDeep will support academia to perform scientific projects in the field of PH. Pharmaceutical / commercial companies will be charged fee for access to PVRI-GoDeep data and / or analysis, thereby creating revenues exclusively devoted to support the PVRI mission and the registries entering their data into PVRI-GoDeep. All requests from academia or commercial companies are to be decided by the PVRI-GoDeep consortium, serving as Use and Access Committee.

Connect with a study center

  • University Giessen PH Center

    Gießen, Hessen 35392
    Germany

    Active - Recruiting

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