The Global Angelman Syndrome Registry

Last updated: February 21, 2024
Sponsor: Foundation for Angelman Syndrome Therapeutics, Australia
Overall Status: Active - Recruiting

Phase

N/A

Condition

N/A

Treatment

Observational study only

Clinical Study ID

NCT05293184
RG-16-078-AM01
  • All Genders

Study Summary

The Global Angelman Syndrome Registry is an online patient organisation driven registry to collect information about the natural history of children and adults with Angelman Syndrome. The registry will facilitate 1) recruitment for clinical trials into therapies and interventions to benefit participants with Angelman Syndrome and their families, and 2) advancement of research and best standards of care for Angelman Syndrome.

The registry is currently available in English, Spanish, Traditional Chinese, Italian, Polish, Hindi, and Brazilian Portuguese.

Eligibility Criteria

Inclusion

Inclusion Criteria:

  • Diagnosis of Angelman Syndrome

Exclusion

Exclusion Criteria:

Study Design

Total Participants: 5000
Treatment Group(s): 1
Primary Treatment: Observational study only
Phase:
Study Start date:
September 28, 2016
Estimated Completion Date:
December 31, 2099

Connect with a study center

  • Queensland University of Technology

    Brisbane, Queensland 4000
    Australia

    Active - Recruiting

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