Supportive Care Needs of Caregivers of People With Erdheim-Chester Disease and Other Histiocytic Diseases

Last updated: February 14, 2025
Sponsor: Memorial Sloan Kettering Cancer Center
Overall Status: Active - Recruiting

Phase

N/A

Condition

Histiocytoma

Treatment

online surveys

Clinical Study ID

NCT03990428
19-213
  • Ages > 18
  • All Genders
  • Accepts Healthy Volunteers

Study Summary

This study is being done to answer the following question: What are the supportive care needs of informal caregivers of people with Erdheim-Chester disease and other histiocytic diseases?

Eligibility Criteria

Inclusion

Inclusion Criteria:

  • Self-identified informal caregiver (family member or friend who provides unpaidsupport) for a patient with Erdheim-Chester Disease (or LCH, RDD, or JXG for theexploratory aim).

  • Proficiency to complete study assessments in English, evaluated at the time ofconsent.

  • Age 18 or over.

Exclusion

Exclusion Criteria:

  • Participant unwilling to sign consent.

  • Participant unable to complete web-based assessments.

Study Design

Total Participants: 170
Treatment Group(s): 1
Primary Treatment: online surveys
Phase:
Study Start date:
June 14, 2019
Estimated Completion Date:
June 30, 2026

Connect with a study center

  • Memorial Sloan Kettering Cancer Center

    New York, New York 10065
    United States

    Active - Recruiting

Not the study for you?

Let us help you find the best match. Sign up as a volunteer and receive email notifications when clinical trials are posted in the medical category of interest to you.