ID Of Prognostic Factors In Mycosis Fungoides/Sezary Syndrome

Last updated: October 1, 2024
Sponsor: Stanford University
Overall Status: Active - Recruiting

Phase

N/A

Condition

Sezary Syndrome

Leukemia

Lymphoproliferative Disorders

Treatment

N/A

Clinical Study ID

NCT02848274
IRB-32652
LYMNHL0134
  • All Genders

Study Summary

The purpose of the study is to develop a prognostic index model for the rare disease of mycosis fungoides and sezary syndrome. This will be done by collecting standardized clinical data at various institutions. The investigators hope this will enable the identification of low- and high-risk groups for survival in order to improve patient care and outcome.

Eligibility Criteria

Inclusion

Inclusion Criteria

  • Diagnosis of advanced stage MF or SS (Stages IIB - IVB) within 6 months of presentation to the participating center

  • Patients that are expected to have care administered at the participating center or jointly with referring physician(s) where follow-up data would be available

Exclusion Criteria

  • Patients diagnosed with early stage MF/SS (Stages IA-IIA) before progressing to advanced stage

  • Patients diagnosed with advanced MF/SS more than 6 months prior to initial presentation to the participating center

  • Exclude one-time consultation type of new patients.

Study Design

Total Participants: 2000
Study Start date:
October 01, 2016
Estimated Completion Date:
March 31, 2027

Connect with a study center

  • Hospital Italiano de Buenos Aires

    Buenos Aires,
    Argentina

    Active - Recruiting

  • Peter MacCallum Cancer Center,

    Melbourne,
    Australia

    Active - Recruiting

  • University of Sao Paulo Medical School

    Sao Paulo,
    Brazil

    Active - Recruiting

  • Peking University First Hospital

    Beijing,
    China

    Active - Recruiting

  • The University of Tokyo

    Tokyo,
    Japan

    Active - Recruiting

  • University Hospitals Birmingham

    Birmingham,
    United Kingdom

    Active - Recruiting

  • City of Hope

    Duarte, California 91010
    United States

    Active - Recruiting

  • Stanford University, School of Medicine

    Palo Alto, California 94305
    United States

    Active - Recruiting

  • University of Iowa

    Iowa City, Iowa 52242
    United States

    Active - Recruiting

  • Hackensack University Medical Center

    Hackensack, New Jersey 07601
    United States

    Active - Recruiting

  • University of Pittsburg

    Pittsburg, Pennsylvania 15260
    United States

    Site Not Available

  • University of Pittsburg

    Pittsburgh, Pennsylvania 15260
    United States

    Active - Recruiting

  • University of Texas Southwestern

    Dallas, Texas 75390
    United States

    Active - Recruiting

  • University of Utah Hospital

    Salt Lake City, Utah 84132
    United States

    Active - Recruiting

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