Italian Network MDS Registry

Last updated: February 27, 2025
Sponsor: Fondazione Italiana Sindromi Mielodisplastiche-ETS
Overall Status: Active - Recruiting

Phase

N/A

Condition

Red Blood Cell Disorders

White Cell Disorders

Treatment

N/A

Clinical Study ID

NCT02808858
Rete italiana registri MDS
  • Ages 18-106
  • All Genders

Study Summary

Epidemiological data collection of adult patients affected by myelodysplastic syndrome (MDS) newly diagnosed.

Eligibility Criteria

Inclusion

Inclusion Criteria:

  • New diagnosis of MDS

Exclusion

Exclusion Criteria:

  • Patient who refuse the signature of informed consent

Study Design

Total Participants: 10000
Study Start date:
September 01, 2013
Estimated Completion Date:
May 31, 2032

Study Description

Development of an Italian regional registries MDS network using the same electronic case report form for data storage, with the following broad aims:

  • Ability to aggregate and process anonymous epidemiological data collected by individual regional registers;

  • Ability to aggregate the available data with those of other international registries existing.

Connect with a study center

  • Ematologia, AO SS. Antonio e Biagio

    Alessandria, AL 15121
    Italy

    Active - Recruiting

  • Clinica di Ematologia, AOU Ospedale di Torrette

    Ancona, AN 60020
    Italy

    Active - Recruiting

  • U.O. Clinica Medicina Interna, IRCCS San Martino IST

    Genova, GE 16132
    Italy

    Active - Recruiting

  • Struttura Cattedra di Ematologia e CTMO, AOU di Parma

    Parma, PR 43100
    Italy

    Active - Recruiting

  • Ematologia e Centro Trapianti, Centro di Riferimento Oncologico della Basilicata

    Rionero in Vulture, PZ 85028
    Italy

    Active - Recruiting

  • S.C.D.U. Ematologia e Terapie cellulari, Ospedale Mauriziano

    Torino, TO 10128
    Italy

    Active - Recruiting

  • FPO - IRCCS di Candiolo

    Candiolo, Torino 10060
    Italy

    Active - Recruiting

  • Ospedale Cardinal Massaia

    Asti,
    Italy

    Active - Recruiting

  • Ematologia AOU Policlinico di Bari

    Bari, 70124
    Italy

    Active - Recruiting

  • Istituto di Ematologia e Oncologia Medica, Policlinico S.Orsola

    Bologna, 40100
    Italy

    Active - Recruiting

  • Ematologia- Ospedale Businco

    Cagliari, 09121
    Italy

    Active - Recruiting

  • Ospedale Maggiore

    Chieri,
    Italy

    Active - Recruiting

  • Cattedra di Ematologia Policlino Careggi

    Firenze, 50134
    Italy

    Active - Recruiting

  • Dipartimento Emato-Oncologia AOU San Martino Genova

    Genova, 16132
    Italy

    Active - Recruiting

  • Medicina interna II Divisione di Ematologia Ospedale S.Luigi Gonzaga

    Orbassano, 10043
    Italy

    Active - Recruiting

  • Azienda Ospedaliera di Padova

    Padova, 35128
    Italy

    Active - Recruiting

  • Azienda Ospedaliera Perugia

    Perugia,
    Italy

    Active - Recruiting

  • AOU San Salvatore

    Pesaro, 61122
    Italy

    Active - Recruiting

  • Ospedale San Giovanbni Battista-Molinette

    Torino,
    Italy

    Active - Recruiting

  • Divisione di Ematologia-Ospedale Cardinale Panico

    Tricase, 73039
    Italy

    Active - Recruiting

Not the study for you?

Let us help you find the best match. Sign up as a volunteer and receive email notifications when clinical trials are posted in the medical category of interest to you.