Bronchiectasis and NTM Research Registry

Last updated: March 8, 2022
Sponsor: COPD Foundation
Overall Status: Active - Recruiting

Phase

N/A

Condition

Bronchiectasis

Treatment

N/A

Clinical Study ID

NCT01822834
BRR
  • Ages 18-120
  • All Genders
  • Accepts Healthy Volunteers

Study Summary

The Bronchiectasis Research Registry is a consolidated database of non-cystic fibrosis (non-CF) Bronchiectasis and Nontuberculosis Mycobacteria (NTM) patients from multiple clinical institutions.

Eligibility Criteria

Inclusion

Inclusion Criteria:

  • Over the age of 18
  • non-CF Bronchiectasis
  • Nontuberculosis Mycobacteria (NTM)

Exclusion

Exclusion Criteria:

  • Under the age of 18
  • CF Bronchiectasis

Study Design

Total Participants: 5000
Study Start date:
January 01, 2008
Estimated Completion Date:
December 31, 2050

Study Description

The Bronchiectasis Research Registry is a consolidated database of non-cystic fibrosis (non-CF) Bronchiectasis and Nontuberculosis Mycobacteria (NTM) patients from multiple clinical institutions. The goal of the Bronchiectasis Research Registry is to support collaborative research and assist in the planning of multi-center clinical trials for the treatment of NTM and non-CF Bronchiectasis, a progressive, non-curable disease of the lungs, which afflicts thousands of patients. The Registry will also be used to provide better insight into the study of the different types of Bronchiectasis, as well as the pathophysiology of the disorder. In 2012, in collaboration with NTM Info and Research, Inc (NTMir) and the consortium members, the COPD Foundation expanded the Bronchiectasis Research Registry to enroll patients with "non tuberculous mycobacteria (NTM) only". Prior to this time, the registry included individuals with Bronchiectasis, with or without NTM.

Connect with a study center

  • COPD Foundation

    Washington, District of Columbia
    United States

    Active - Recruiting

  • Univeristy of North Carolina at Chapel Hill

    Chapel Hill, North Carolina
    United States

    Site Not Available

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