The Parkinson's Genetic Research Study

Last updated: May 11, 2024
Sponsor: University of Washington
Overall Status: Active - Recruiting

Phase

N/A

Condition

Dyskinesias

Parkinson's Disease

Treatment

N/A

Clinical Study ID

NCT01558479
36777
  • Ages > 18
  • All Genders
  • Accepts Healthy Volunteers

Study Summary

The Parkinson's Genetic Research Study (PaGeR), headed by Dr. Cyrus Zabetian, is searching for genes that increase the risk of developing Parkinson's disease (PD) and related disorders. The study is a joint effort by neurologists and researchers across the United States and is sponsored by the National Institutes of Health. The coordinating center for PaGeR is located at the University of Washington and the VA Puget Sound Health Care System in Seattle.

Eligibility Criteria

Inclusion

Inclusion Criteria:

  • Over 18 years of age

  • Member of a family in which there are two or more living individuals who have beendiagnosed with Parkinson's disease

Exclusion

Exclusion Criteria:

  • Under 18 years of age

Study Design

Total Participants: 5000
Study Start date:
September 01, 2009
Estimated Completion Date:
October 31, 2026

Study Description

PaGeR is focusing on families in which two or more people have been diagnosed with PD. Past research suggests that such "multiplex" families might hold the key to the discovery of new PD genes.

To take part in PaGeR, participants will be asked to complete a questionnaire and to undergo an interview, a neurological exam, a short memory test, and a blood draw. Enrollment in the study usually takes between one and two hours. There is no cost to participate, and all study information is kept strictly confidential.

There are a number of designated sites across the country where families can enroll. However, for family members who are unable to travel to one of these sites, other arrangements can be made.

Connect with a study center

  • University of California, San Diego

    La Jolla, California 92093
    United States

    Site Not Available

  • Stanford University Medical Center

    Stanford, California 94205
    United States

    Site Not Available

  • Emory University/ Wesley Woods Health Center

    Atlanta, Georgia 30329
    United States

    Active - Recruiting

  • Albany Medical College

    Albany, New York 12208
    United States

    Site Not Available

  • University of Cincinnati

    Cincinnati, Ohio 45267
    United States

    Active - Recruiting

  • Portland VA Medical Center

    Portland, Oregon 97239
    United States

    Active - Recruiting

  • University of Utah

    Salt Lake City, Utah 84108
    United States

    Site Not Available

  • University of Washington

    Seattle, Washington 98118
    United States

    Active - Recruiting

  • VA Puget Sound Health Care System

    Seattle, Washington 98108
    United States

    Active - Recruiting

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