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Found 67 clinical trials
AR-Power Patient Powered Research Network

ArthritisPower is a patient research network and database (registry) to collect prospective information about demographics, self-reported diagnoses and medications, and willingness to participate in research from participants with rheumatoid arthritis (RA), spondyloarthritis (SpA), and other musculoskeletal conditions. Participants will provide information from their smartphones or personal computers. The information will …

  • 23 Jan, 2021
  • 1 location
Clinical Research on Advanced Warning Factors Of Respiratory Injury in Dermatomyositis

Dermatomyositis (DM) is a highly heterogeneous autoimmune disease characterized by rash and myasthenia. Beside these, respiratory involvement is one of the common complications of DM. Interstitial lung disease (ILD) occur in approximately 90% of patients with DM, part of them may manifest rapidly progressive-interstitial lung disease (rp-ILD), which progresses into …

autoimmune disease
  • 09 Jul, 2021
  • 1 location
Pregnancy and Medically Assisted Conception in Rare Diseases

' pregnancies. Using a single computer server, the investigators plan to set up a large prospective study of pregnancies in patients with rare diseases: various forms of myositis, lupus, antiphospholipid

antiphospholipid syndrome
rare diseases
connective tissue disorder
rheumatic diseases
  • 13 May, 2021
  • 2 locations
Rheumatology Patient Registry and Biorepository

To facilitate clinical, basic science, and translational research projects involving the study of rheumatic diseases.

rheumatoid arthritis
ankylosing spondylitis
reactive arthritis
  • 14 Oct, 2021
  • 1 location
Studies of the Natural History, Pathogenesis, and Outcome of Autoinflammatory Diseases Including Juvenile Dermatomyositis

Purpose The purpose of this protocol is 1. To comprehensively evaluate patients with autoinflammatory diseases clinically, genetically and immunologically at the autoinflammatory disease clinic at the NIH. 2. To follow patients with autoinflammatory Diseases that are genetically defined including Neonatal-Onset Multisystem Inflammatory Disease (NOMID), the most severe clinical phenotype of …

skin disease
inflammatory disease
computerized tomography
  • 29 Jul, 2022
  • 1 location
Phenomics in Autoimmune and Inflammatory Diseases

The family of inflammatory/autoimmune systemic diseases (IAD) form a continuum from pure inflammatory diseases to pure autoimmune diseases, encompassing a large panel of inflammatory diseases with some autoimmune components, and vice versa. Cross phenotyping of patients with IAD should be heuristic and help revise the nosography and the understanding of …

tumor necrosis factor alpha
autoimmune diseases
  • 20 Dec, 2021
  • 5 locations
At-Home Research Study for Patients With Autoimmune, Inflammatory, Genetic, Hematological, Infectious, Neurological, CNS, Oncological, Respiratory, Metabolic Conditions

We are the missing link in clinical trials, connecting patients and researchers seamlessly and conveniently using a mobile health platform to advance medical research. We make it easy for patients to contribute to research for medical conditions that matter most to them, regardless of their location or ability to travel.

Accepts healthy volunteers
  • 26 Jan, 2022
  • 1 location
Evaluation of Patients With HAM/TSP

Objective Human T-lymphotropic virus type-I-associated myelopathy / tropical spastic paraparesis (HAM/TSP) is a rare neurologic disorder that affects less than 5% of patients infected with the HTLV-I virus. The purpose of this protocol is to study the natural history of HAM/TSP by monitoring clinical progression of patients longitudinally. Additionally, we …

Accepts healthy volunteers
  • 09 Aug, 2022
  • 1 location
Sporadic Inclusion Body Myositis Natural History Study

This is a prospective natural history study on patients with clinically defined sIBM. Participants will be assessed every 6 months over two years (five visits total). We will include 150 participants, enrolled across 13 sites, with sporadic IBM, diagnosed according to established criteria.

inclusion body myositis
  • 03 Dec, 2021
  • 13 locations
Environmental Risk Factors for the Anti-synthetase Syndrome

autoimmune disorder myositis weakens the muscles and may cause other health problems. Environmental exposures associated with myositis include ultraviolet radiation, stressful life events and muscle

pulmonary disease
pulmonary function test
connective tissue disorder
house dust
Accepts healthy volunteers
  • 11 Aug, 2022
  • 2 locations