Infantile Neuronal Ceroid Lipofuscinosis Clinical Trials

A listing of Infantile Neuronal Ceroid Lipofuscinosis medical research trials actively recruiting patient volunteers. Search for closest city to find more detailed information on a research study in your area.

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Found 9 clinical trials
TeamBaby - Safe, Digitally Supported Communication in Obstetrics and Gynecology (TeamBaby)

conducted incl. retrospective cohort study; Effectiveness study with randomized controlled study design (questionnaires and interviews). In the intervention group, pregnant women and their

Accepts healthy volunteers
  • 0 views
  • 04 Oct, 2022
  • 2 locations
Effects of Peripherally Acting µ-opioid Receptor Antagonists on Acute Pancreatitis - An Investigator-initiated, Randomized, Placebo-controlled, Double-blind Clinical Trial

This study will investigate the effect of peripheral acting opioid antagonist (PAMORA) on the disease course of patients with acute inflammation of the pancreas (acute pancreatitis). The study will be conducted by treating hospitalized patients with acute pancreatitis with a PAMORA (methylnaltrexone).

  • 0 views
  • 29 Oct, 2022
  • 4 locations
GAG-therapy Efficacy Trial Solution for Bladder Pain Syndrome/ Interstitial Cystitis (GETSBI Study) (GETSBI)

Rationale Efficacy study (RCT) for glycosaminoglycan(GAG)-therapy for the indication bladder pain syndrome / interstitial cystitis with Hunner lesion subtype (BPS-IC H+). reason for this study is a current lack of evidence regarding its efficacy and cost-effectiveness. Main objective is to determine short and long term efficacy of GAG therapy (bladder …

  • 7 views
  • 07 Oct, 2022
  • 7 locations
Optic-to-Audio Device in a Pediatric Cohort With CLN3-related Conditions or Low Vision

Background CLN3 involves vision loss observed around the preschool years, with eventual progression to blindness within 1-3 years. Researchers want to test an

  • 0 views
  • 07 Oct, 2022
  • 1 location
The Role of Proprioceptive Deficits and Psychosocial Factors in Pregnancy-related Pelvic Girdle Pain: a Follow-up Study

of this study is to investigate whether lumbar proprioceptive deficits, a disturbed body perception at the lumbar spine and psychosocial factors (incl. pain-related fear of movement, depression

anxiety
depression
  • 0 views
  • 04 Oct, 2022
  • 1 location
"HIIT Med Kiloene".

In Denmark, 15% of children are overweight and 5% obese. Obese children and adolescents have several metabolic complications, such as pre-diabetes, hypertension, dyslipidaemia, and excess fat deposition in liver, already at a young age. In addition, obese children suffer from psychological issues such as low quality of life and anxiety. …

Accepts healthy volunteers
  • 0 views
  • 04 Oct, 2022
  • 1 location
Caregiving Networks Across Disease Context and the Life Course

Background In the U.S., about 53 million informal, unpaid caregivers provide care to a person who is ill, is disabled, or has age-related loss of function. These caregivers may be adult children, spouses, parents, or others. The stress of providing long-term care affects caregivers health and well-being. Researchers want to …

Accepts healthy volunteers
  • 0 views
  • 07 Oct, 2022
  • 1 location
Investigations of Juvenile Neuronal Ceroid Lipofuscinosis

Background CLN3, or Batten disease, is a genetic disorder. This deadly disease leads to decline of brain and nervous system functions. Symptoms of CLN3 typically

batten
ceroid lipofuscinosis
genetic disorder
seizure
  • 93 views
  • 04 Oct, 2022
  • 1 location
International Wilson's Disease Patient Registry (iWilson Registry)

Longitudinal, observational, non-interventional, standard of care Registry. Data will be collected from the routinely scheduled WD clinic visits at approximately 6-12 month intervals. At enrolment, in addition to data from the clinic visit, retrospective data will be collected from the diagnostic evaluation and any relevant past medical history and a …

  • 0 views
  • 20 Oct, 2022
  • 4 locations