Last updated on November 2019

Idiopathic Pulmonary Fibrosis and Interstitial Lung Disease Prospective Outcomes Registry


Brief description of study

This registry will collect data on the strategies used to achieve a diagnosis of Idiopathic Pulmonary Fibrosis (IPF) and Chronic Fibrosing Interstitial Lung Disease with Progressive Phenotype (ILD) and the treatment and management efforts applied throughout study follow-up, clinical outcome events and patient reported outcome data. Blood samples will be collected periodically throughout the study for use in future research efforts. For participants with non-IPF, chronic fibrosing ILD with progressive phenotype, HRCT images will be collected throughout the study for use in future research efforts.

Clinical Study Identifier: NCT01915511

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Duke University

Durham, NC United States
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University of Chicago

Chicago, IL United States
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Yale University

New Haven, CT United States
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Piedmont Healthcare

Austell, GA United States
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Stanford University

Stanford, CA United States
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University of Minnesota

Minneapolis, MN United States
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Vermont Lung Center

Burlington, VT United States
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St. Joseph's Hospital

Phoenix, AZ United States
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Oregon Clinic

Portland, OR United States
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PulmonIx LLC

Greensboro, NC United States
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Lahey Clinic

Burlington, MA United States
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Temple University

Philadelphia, PA United States
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PMG Research

Wilmington, NC United States
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University of Michigan

Ann Arbor, MI United States
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University of Louisville

Louisville, KY United States
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Baptist Pulmonary

Lexington, KY United States
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NYU Medical Center

New York, NY United States
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Tulane University

New Orleans, LA United States
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Lynchburg Pulmonary Associates

Lynchburg, VA United States
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National Jewish Health

Denver, CO United States
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PA of Stamford

Stamford, CT United States
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Cleveland Clinic

Cleveland, OH United States
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Vanderbilt University

Nashville, TN United States
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University of California, Davis

Sacramento, CA United States
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University of Miami

Miami, FL United States
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South Miami Hospital

South Miami, FL United States
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University from Virginia

Baltimore, MD United States
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Washington University

Saint Louis, MO United States
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Albany Medical Center

Albany, NY United States
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UNC Chapel Hill

Chapel Hill, NC United States
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Pulmonix LLC

Greensboro, NC United States
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Wake Forest Baptist Health

Winston-Salem, NC United States
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University of Pennsylvania

Philadelphia, PA United States
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University of Pittsburgh

Pittsburgh, PA United States
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Baylor College of Medicine

Houston, TX United States
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Renovatio Clinical

The Woodlands, TX United States
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