Last updated on January 2019

PKUDOS: Phenylketonuria (PKU) Demographic Outcomes and Safety Registry

Brief description of study

The objective of this study is to evaluate the safety of long-term treatment with Kuvan.

Detailed Study Description

The PKUDOS program is a voluntary, multicenter, strictly observational program for patients with PKU who have either received Kuvan therapy, or currently receive Kuvan, or intends to begin receiving Kuvan therapy within 90 days of entering the registry.

Clinical Study Identifier: NCT00778206

Contact Investigators or Research Sites near you

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Caroline Moore

Dixie Regional Medical Center
Saint George, UT United States
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Recruitment Status: Open

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