Last updated on February 2019

Transthyretin-Associated Amyloidoses Outcome Survey (THAOS)


Brief description of study

THAOS is a global, multi-center, longitudinal observational survey open to all patients with transthyretin-associated amyloidoses (ATTR), including ATTR-PN (polyneuropathy), ATTR-CM (cardiomyopathy) and wild-type ATTR-CM. It is open-ended with a minimum duration of 10 years. Patients will be followed as long as they are able to participate.

The principal aims of this outcome survey are to better understand and characterize the natural history of the disease by studying a large and heterogenous patient population. Survey data may be used to develop new treatment guidelines and recommendations, and to inform and educate clinicians about the management of this disease.

Detailed Study Description

n/a NA

Clinical Study Identifier: NCT00628745

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Mayo Clinic Arizona

Phoenix, AZ United States
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Office of Sponsored Research

San Francisco, CA United States
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UC Denver

Aurora, CO United States
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Clinical Trials Unit

Chicago, IL United States
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Northwestern University

Chicago, IL United States
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Clinical Research Office

Oak Lawn, IL United States
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University of Maryland

Baltimore, MD United States
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Johns Hopkins Hospital

Baltimore, MD United States
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University of Michigan

Ann Arbor, MI United States
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Mayo Clinic

Rochester, MN United States
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University of Pennsylvania

Philadelphia, PA United States
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Office of Sponsored Research

Pittsburgh, PA United States
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Admin

Pittsburgh, PA United States
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IRB

Nashville, TN United States
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Chu De Fort De France

Fort De France, France
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CHU Henri Mondor-DRCD

Paris cedex 10, France
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Hospital Donostia

Donostia-San Sebastian, Spain
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Hospital Son Llatzer

Palma de Mallorca, Spain
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Recruitment Status: Open


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