Last updated on February 2018

International Collaborative Gaucher Group (ICGG) Gaucher Registry


Brief description of study

The ICGG Gaucher Registry is an ongoing, international multi-center, strictly observational program that tracks the routine clinical outcomes for patients with Gaucher disease, irrespective of treatment status. No experimental intervention is involved; patients in the Registry undergo clinical assessments and receive care as determined by the patient's treating physician.

The objectives of the Registry are:

  • To enhance the understanding of the variability, progression, and natural history of Gaucher disease with the ultimate goal of better guiding and assessing therapeutic interventions;
  • To provide the Gaucher medical community with recommendations for monitoring patients and to provide reports on patient outcomes to help optimize patient care; and
  • To evaluate the long-term effectiveness of Cerezyme.

Clinical Study Identifier: NCT00358943

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Investigational Site Number 840042
Sacramento, CA United States
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Investigational Site Number 840096
Tampa, FL United States
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Investigational Site Number 840092
Boston, MA United States
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Investigational Site Number 840090
Helena, MT United States
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Investigational Site Number 840099
Morristown, NJ United States
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Investigational Site Number 840057
Paterson, NJ United States
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Investigational Site Number 840048
Cleveland, OH United States
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Investigational Site Number 840094
Dublin, OH United States
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Investigational Site Number 151002
Adelaide, Australia
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Investigational Site Number 151008
Parkville, Australia
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Investigational Site Number 076007
Porto Alegre, Brazil
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Investigational Site Number 124020
Halifax, Canada
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Investigational Site Number 153203-
Beijing, China
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Investigational Site Number 9889
Ash Sharqia, Egypt
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Investigational Site Number 8345
Cairo, Egypt
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Investigational Site Number 9829
Cairo, Egypt
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Investigational Site Number 9830
Cairo, Egypt
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Investigational Site Number 153230
ANGERS Cedex 01, France
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Investigational Site Number 250015
ANGERS Cedex 01, France
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Investigational Site Number 151745
Montpellier, France
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Investigational Site Number 2500013
Montpellier, France
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Investigational Site Number 250016
TOURS Cedex 9, France
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Investigational Site Number 344001
Kowloon, Hong Kong
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Investigational Site Number 380008
Catania, Italy
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Investigational Site Number 152013
Genova, Italy
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Investigational Site Number 380006
Genova, Italy
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Investigational Site Number 380004
Milano, Italy
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Investigational Site Number 380012
Milano, Italy
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Investigational Site Number 380005
Modena, Italy
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Investigational Site Number 380002
Monza (MB), Italy
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Investigational Site Number 380011
Monza, Italy
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Investigational Site Number 380010
Napoli, Italy
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Investigational Site Number 380003
Padova, Italy
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Investigational Site Number 380007
Roma, Italy
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Investigational Site Number 380001
Udine, Italy
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Investigational Site Number 153205
Abeno-ku, Japan
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Investigational Site Number 153217
Chiba, Japan
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Investigational Site Number 153204
Setagaya, Japan
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Investigational Site Number 153203
Yonago-shi, Japan
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Investigational Site Number 153178
Busan, Korea, Republic of
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Investigational Site Number 153191
Daejeon, Korea, Republic of
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Investigational Site Number 153228
Jeju-si, Korea, Republic of
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Investigational Site Number 153225
Jeonnam, Korea, Republic of
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Investigational Site Number 151149
Seoul, Korea, Republic of
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Investigational Site Number 153176
Seoul, Korea, Republic of
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Investigational Site Number 153180
Seoul, Korea, Republic of
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Investigational Site Number 153188
Seoul, Korea, Republic of
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Investigational Site Number 153192
Seoul, Korea, Republic of
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Investigational Site Number 153196
Seoul, Korea, Republic of
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Investigational Site Number 153212
Seoul, Korea, Republic of
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Investigational Site Number 153222
Seoul, Korea, Republic of
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Investigational Site Number 458001
Jalan Pahang, Malaysia
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Investigational Site Number 604001
Arequipa, Peru
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Investigational Site Number 608001
Manila, Philippines
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Investigational Site Number 702001
Singapore, Singapore
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Investigational Site Number 703001
Bratislava, Slovakia
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Investigational Site Number 150346
Sandton, South Africa
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Investigational Site Number 764002
Bangkok, Thailand
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Investigational Site Number 764003
Bangkok, Thailand
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Investigational Site Number 764001
Bangkok, Thailand
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Investigational Site Number 076002
São Paulo, Brazil
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Investigational Site Number 154095
Borås, Sweden
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Investigational Site Number 154092
Norrköping, Sweden
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Recruitment Status: Open


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