Last updated on June 2019

International Collaborative Gaucher Group (ICGG) Gaucher Registry


Brief description of study

The ICGG Gaucher Registry is an ongoing, international multi-center, strictly observational program that tracks the routine clinical outcomes for patients with Gaucher disease, irrespective of treatment status. No experimental intervention is involved; patients in the Registry undergo clinical assessments and receive care as determined by the patient's treating physician.

The objectives of the Registry are:

  • To enhance the understanding of the variability, progression, and natural history of Gaucher disease with the ultimate goal of better guiding and assessing therapeutic interventions;
  • To provide the Gaucher medical community with recommendations for monitoring patients and to provide reports on patient outcomes to help optimize patient care; and
  • To evaluate the long-term effectiveness of Cerezyme.

Clinical Study Identifier: NCT00358943

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Investigational Site Number 840075

Coral Springs, FL United States
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Investigational Site Number 840112

Jacksonville, FL United States
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Investigational Site Number 840027

Indianapolis, IN United States
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Investigational Site Number 840050

Grand Rapids, MI United States
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Investigational Site Number 840016

New Brunswick, NJ United States
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Investigational Site Number 840089

Philadelphia, PA United States
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Investigational Site Number 840034

Philadelphia, PA United States
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Investigational Site Number 840078

Charlottesville, VA United States
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Investigational Site Number 643002

sait-Petersburg, Russian Federation
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Recruitment Status: Open


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