Parkinson's affects speech, so many
people find that their speech devices stop working after they get Parkinson's.
We intend to make such problems a thing of the past. The Speech Accessibility
Project online (SAP online) is aimed at better automatic speech recognition for
people with Parkinson's Disease or who otherwise experience difficulty with
speech. The goal is that you will be
able to easily access smart speakers, cell phones, voice menus, and all the
other types of information provided via speech. SAP online is currently collecting
speech samples from people with Parkinson's, Multiple Systems Atrophy, Dementia
with Lewy Bodies, Progressive Supranuclear Palsy, Post-DBS, or other
Parkinsonisms. Once enrolled in the study, you will record your speech by
reading simple sentences and responding to questions.
Many schools and companies are
interested in solving this problem, but in order to do so, they need your
speech. The Speech Accessibility Project
will provide your speech as a community resource to companies and schools with
good ideas for accessible technology.
Your contribution is essential for us to make these significant
To participate in the study, you will
need an email address, and a computer with internet access. You will use our web-based recording tool to
record your speech by reading 400 sentences. You will also respond to 50
questions about your daily life, hobbies, music and books. For every 150
recordings you complete, we will send you a $60 gift card. If you complete all 450 recordings, you can
earn up to $180. If you have someone
helping you, they can earn up to $90 for helping you to participate.
People interested in this study will
sign up for a meeting with a Speech-Language Pathologist at LSVT Global. They
will serve as your mentor to help you get started. They will discuss the study
with you, then show you how to use the web-based recording tool to record your
speech. After your first mentor meeting,
you can login to the system to record speech at any time of day, 24/7.
SAP online has been designed to capture
your data securely online, over the internet.
This study is expected to be completed fairly quickly. We expect that most people will be able to
record their responses to all 450 prompts in one to five recording sessions,
but you can go at your own pace.
The collected speech samples will be
stored securely in a custom database built by the UIUC Beckman Institute and will
not include your name or other personal, identifying information.
The entire database of speech samples
will then be shared with any company or school who proposes a strategy that is
likely to make automatic speech recognition more accessible to people with
Parkinson's. This includes our five coalition partners, Amazon, Apple, Google,
Meta and Microsoft. Each of our coalition partners has signed a data use
agreement with UIUC that assures the privacy of participants and
confidentiality of data.