Racial/ethnically Diverse Sexual and Gender Minority Caregivers of Individuals With Alzheimer's Disease and Related Dementias

  • STATUS
    Recruiting
  • End date
    Mar 1, 2025
  • sponsor
    Alzheimer's Association
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Updated on 24 February 2023
See if I qualify
dementia
alzheimer's disease
Online studies
Accepts healthy volunteers

Summary

This mixed-methods study characterizes the caregiving experiences of racial/ethnically diverse SGM caregivers of individuals living with Alzheimer's Disease and related dementias (ADRD), and identifies socioenvironmental, risk, and protective factors associated with their health.

Description

We will conduct 25 one-time in-depth interviews to explore the lived experiences of racial/ethnically diverse SGM ADRD caregivers. Interviews will take about two hours, and participants will be compensated $50 for completing the interviews. Prioritizing cultural humility, the interviews will be conducted by a bilingual interviewer who speaks both English and Spanish and identifies as SGM. The 2-hour interview window should provide sufficient time for participants to share a detailed life history and build trust/rapport prior to asking more sensitive questions. In an effort to minimize participant burden, we will conduct interviews via Zoom/telephone to accommodate barriers and challenges (e.g., transportation, time away from care recipient) commonly experienced by ADRD caregivers. Interviews will focus on Socioenvironmental Factors, Risk and Protective Factors, and Health and Well-being. Participants will be asked about their experiences with caregiving; their access and use of social resources; racial/ethnic identity, their SGM identity; and their health and healthcare utilization.

Details
Condition Alzheimer's Disease, Dementia, Caregivers, Healthy Volunteer
Clinical Study IdentifierTX310368
SponsorAlzheimer's Association
Last Modified on24 February 2023

Eligibility

 Yes No Not Sure

Inclusion Criteria

Potential participants are eligible if they: (1) Self-identify as SGM (i.e
lesbian, gay, bisexual, transgender, queer, intersex) and as a racial/ethnic
minority (i.e., Hispanic/Latino, African American, Asian American, Native
American, multi-race); (2) Provide care to an adult with ADRD at least eight
hours a week on average; and (3) Are able to complete an interview in English
or Spanish. ADRD caregiver status will be confirmed with the Ascertain
Dementia 8-Item Informant Questionnaire (AD8), which is a commonly used proxy
report of ADRD diagnosis

Exclusion Criteria

Current and severe substance use/abuse, psychiatric disorders, and/or
inability to provide verbal consent
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Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.

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If you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.

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Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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