Palliative care telehealth delivered Program of SUPPORT-D Intervention for persons with Alzheimer’s Disease and caregivers

  • STATUS
    Recruiting
  • days left to enroll
    31
  • participants needed
    60
  • sponsor
    Medical University of SC KL2 grant
Updated on 28 March 2023
cognitive impairment
mild cognitive impairment
Online studies

Summary

Researchers from the Medical University of South Carolina College of Nursing are seeking caregivers and their loved-ones with a recent Alzheimer’s or Mild Cognitive Impairment diagnosis to volunteer for a research study. The purpose of this study is to help test an educational program (SUPPORT-D) for families. The program will focus on managing daily stress, improving quality of life, home safety, and advanced care planning.

Description

Participants who would like to join this study, will be sent program materials, asked to review them, and take part in two study visits over six weeks. These visits with a nurse will last 45- 60 minutes and are conducted virtually (via Microsoft Teams or telephone). Researchers will ask them to complete several surveys related to knowledge of Alzheimer’s disease, acceptability and feasibility of the intervention, stress, caregiver burden, symptom burden, quality of life, disease preparedness, safety, technology literacy, and advanced care planning. Study compensation is provided for time.

Details
Condition Alzheimer's Disease, Caregivers, Mild Cognitive Impairment
Clinical Study IdentifierTX310293
SponsorMedical University of SC KL2 grant
Last Modified on28 March 2023

Eligibility

Yes No Not Sure

Inclusion Criteria

Persons with Alzheimer’s Disease (we anticipate cognitive impairment within
this group)
years old or older
Diagnosis of Mild Cognitive Impairment, Alzheimer’s Disease or suspected Alzheimer’s disease (FAST score < 4)
Able to read and speak English (intervention in English)
Caregivers (CG)
Able to read and speak English (intervention in English)
Non-paid (eliminates professional caregivers)
> 18 years old or older
Provides care to someone living with Mild Cognitive Impairment, Alzheimer’s Disease or suspected Alzheimer’s disease (self-report)
Able to read and speak English (written materials in English)
Clear my responses

How to participate?

Step 1 Connect with a study center
What happens next?
  • You can expect the study team to contact you via email or phone in the next few days.
  • Sign up as volunteer  to help accelerate the development of new treatments and to get notified about similar trials.

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Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.

Learn more

If you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.

Learn more

Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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