The RISE Registry

  • STATUS
    Recruiting
  • End date
    Aug 31, 2024
  • sponsor
    National Institutes of Aging
Send
Updated on 28 March 2023
See if I qualify
Investigator
Brittany Klenczar
Primary Contact
Online Study Center (online study) Contact
dementia
alzheimer's disease
Online studies
Accepts healthy volunteers

Summary

The RISE Registry - (Research Inclusion Supports Equity) is a national effort to address the needs of 18+ LGBTQIA+ who: Have memory concerns or a memory loss diagnosis such as Alzheimer's disease or related dementia (ADRD) Are helping care for someone with memory loss or a memory loss diagnosis Individuals who sign up for the registry will have the opportunity to participate in ADRD research to promote representation and inclusion in research findings. Additionally, the RISE registry provides LGBTQIA+ friendly resources for adults with memory concerns or for those who serve as caregivers and share opportunities to participate in educational or advocacy activities.

To join the RISE registry, please go to https://www.theriseregistry.org/

Description

Form a network of SGM community members, service providers, clinicians, and researchers with expertise in working with SGM people living with ADRD and SGM caregivers. Those who sign up for the registry will be given the opportunity to participate in research studies and promote representation of LGBTQIA+ people in research. This ensures that future efforts address the unique needs of this population.  
To join the RISE registry, please go to https://www.theriseregistry.org/

Details
Condition Dementia, Alzheimer's Disease, Caregiver, Healthy Volunteer, LGBTQIA+
Clinical Study IdentifierTX310285
SponsorNational Institutes of Aging
Last Modified on28 March 2023

Eligibility

 Yes No Not Sure

Inclusion Criteria

+
LGBTQIA+
Have memory concerns or a memory loss diagnosis such as Alzheimer's disease or related dementia (ADRD)
Are helping care for someone with memory loss or a memory loss diagnosis

Exclusion Criteria

Does not identify as a sexual or gender minority
Younger than 18 years old
Clear my responses
Read more

How to participate?

Step 1 Connect with a study center
What happens next?
  • You can expect the study team to contact you via email or phone in the next few days.
  • Sign up as volunteer  to help accelerate the development of new treatments and to get notified about similar trials.

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Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.

Learn more

If you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.

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Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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dementia
alzheimer's disease
Online studies
Accepts healthy volunteers

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