The Experience of Caregiving Among Rural Males Caring for a Family Member with Alzheimer’s Disease: A Descriptive Phenomenology Study

  • STATUS
    Recruiting
  • End date
    May 31, 2023
  • sponsor
    University of North Dakota
Updated on 19 January 2023
Investigator
Randy Huard, PhD(c), DNP, RN, PHN
Primary Contact
Online Study Center (online study) Contact
Online studies
Accepts healthy volunteers

Summary

The purpose of this research is to describe the caregiving experience of rural males who provide care for a family member with Alzheimer's disease. The knowledge gained from this study will help nurses and other healthcare providers understand the experience and potential stressors placed on these caregivers. In turn, this may help providers open conversations related to any potential needs of the rural male caregiver. Further, the study findings may lay the groundwork for future research which will develop and test interventions to support rural male caregivers, helps to establish resources, and construct policies that are applicable to the overall health and well-being of this increasing population

Reside in Minnesota, North or South Dakota; reside in a Rural-Urban Commuting Area code 7-10 (these codes define "rural")

Description

This qualitative study will use descriptive phenomenology as its research method. One to two interviews will be conducted with participants to elicit their experiences with caregiving. The second interview will be used if following initial data analysis, further clarification and insight into a response is needed by the researcher. Face to face interviews will be conducted with those participants who are in driving distance from the student researcher and Zoom interviews will be conducted with those outside of that area. Study participants will also complete a demographic questionnaire to determine eligibility. Data collected on that form will include age, zip code, relationship to care recipient, marital status, racial identity, employment status, number of hours providing care, length of time providing care, and annual income. During the interviews, five universal questions will be asked of all participants to gain an understanding of the caregiving experience (see attachment for interview protocol). Interviews will be transcribed into written text and analyzed. The analysis methodology will follow the protocol of Giorgi where all transcribed interviews will be read in their entirety to gain an understanding of the experience. Following this, the descriptions will be identified as meaning units which will then be moved into an abstract form and labeled into a category. Similar categories will be grouped into themes. A formal letter and email messages will be sent to social service/public health supervisors in local county health departments to aid in the potential recruitment of participants. Interviews will be recorded using two SONY ICD-UX560 Digital Voice Recorders. Interviews that are conducted using a web-based platform (Zoom) will not be recorded directly to these platforms but will use the same voice recording approach as those that are conducted face-to-face. NVivo, a password protected qualitative software analysis software will be utilized to facilitate analysis. Both face to face and Zoom interviews will be conducted in a location that is decided upon by the individual participant and agreed upon by the researcher. The researcher will recommend an environment that is quiet, private, and has limited distractions. The researcher will also recommend that interviews not take pace in the presence of the care recipient.

Details
Condition Alzheimer's Disease,*Healthy Volunteers, Caregivers
Clinical Study IdentifierTX310253
SponsorUniversity of North Dakota
Last Modified on19 January 2023

Eligibility

Yes No Not Sure

Inclusion Criteria

Participants must identify as male
Be at least 18 years of age
Provide care to a relative with Alzheimer's disease diagnosed by a trained medical professional
Be free of cognitive impairments themselves
Reside in Minnesota, North or South Dakota; reside in a Rural-Urban Commuting Area code 7-10 (these codes define "rural")
Speak English

Exclusion Criteria

Anyone who does not meet the inclusion criteria above
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Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.

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If you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.

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Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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