Parkinson's Research With Inclusion, Diversity and Equity (PRIDE)

  • STATUS
    Recruiting
  • End date
    Nov 24, 2024
  • participants needed
    600
  • sponsor
    University of Nevada, Las Vegas
Updated on 24 October 2022
Accepts healthy volunteers

Summary

The purpose of this study is to identify the health and healthcare needs of LGBTQIA+ and non LGBTQIA+ communities living with Parkinson's disease.

Description

Four million LGBTQIA+ adults age 50+ live in the U.S. Very little is known about the needs of the LGBTQIA+ community living with Parkinson's disease (PD). This research will work with the LGBTQIA+ community to learn about the health needs of those living with PD. The researchers will also talk to caregivers about their care experiences, and ask healthcare providers about their work with LGBTQIA+ communities living with PD. LGBTQIA+ adults have more health and care problems. This study will test if LGBTQIA+ adults with PD experience more health and care problems. This study will also see if caregivers have more problems and how providers are caring for the LGBTQIA+ community living with PD. LGBTQIA+ adults living with PD, caregivers and care providers will be asked to fill out a survey. Some caregivers will be asked to participate in an hour interview to learn about their experiences. Surveys and interviews can be done by phone or internet. The study will find ways to improve health and care of LGBTQIA+ people living with PD. The study will share findings so others can help to make care better for the LGBTQIA+ community.

Details
Condition Parkinson Disease
Clinical Study IdentifierNCT05556993
SponsorUniversity of Nevada, Las Vegas
Last Modified on24 October 2022

Eligibility

Yes No Not Sure

Inclusion Criteria

Identify as LGBTQIA+ or non-LGBTQIA+
Aged 18+
Ability to complete the phone or online survey in English/Spanish
Diagnosis of Parkinson's disease or a caregiver of a person with Parkinson's disease
Health care professional that provides care to patients living with Parkinson's disease

Exclusion Criteria

Not having a diagnosis of Parkinson's disease
Not currently or in the past a caregiver of a person with Parkinson's disease
Not currently providing care to patients with Parkinson's disease
Inability to complete the survey in English or Spanish
Inability to provide informed consent
Clear my responses

How to participate?

Step 1 Connect with a study center
What happens next?
  • You can expect the study team to contact you via email or phone in the next few days.
  • Sign up as volunteer  to help accelerate the development of new treatments and to get notified about similar trials.

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Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.

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If you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.

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Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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