Glioma Developmental and HyperActive Ras Tumor (DHART) Board

  • End date
    Jul 29, 2025
  • participants needed
  • sponsor
    Memorial Sloan Kettering Cancer Center
Updated on 18 September 2022
brain tumor


This study will collect medical records, scan results, and complete surveys to create a registry about people with a neurofibromatosis type 1-associated brain tumor (NF1-associated glioma). A registry is a collection of health information about individuals, and it is usually focused on a specific diagnosis or condition.

This registry study will help the researchers learn more about the diagnosis, treatment, and quality of life of people with NF1-associated glioma. The researchers want to understand what happens as a result of different treatments for NF1-associated glioma and how these treatments and the disease itself affect people's lives over a period of time. Information collected during this study could affect how doctors diagnose, test, and treat NF1-associated glioma, and the study could help future patients with this type of cancer.

Condition Glioma
Clinical Study IdentifierNCT05489783
SponsorMemorial Sloan Kettering Cancer Center
Last Modified on18 September 2022


Yes No Not Sure

Inclusion Criteria

Clinical diagnosis that meets NIH criteria for NF1 disease by either 1) documented clinical record establishing NF1 or 2) self-reported with supported documentation upon medical record collection
Willing to have historical and future NF1 related health records sent to registry for review
Radiologic or pathologically confirmed glioma
Individuals ≥18 years of age on the date of informed consent

Exclusion Criteria

Unwillingness to sign informed consent
No proficiency in English or Spanish as determined by the Investigator
Clear my responses

How to participate?

Step 1 Connect with a study center
What happens next?
  • You can expect the study team to contact you via email or phone in the next few days.
  • Sign up as volunteer to help accelerate the development of new treatments and to get notified about similar trials.

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Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.

Learn more

If you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.

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Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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