Identifying Needs and Services for Caregivers of Community-Dwelling Persons with Dementia

  • STATUS
    Recruiting
  • days left to enroll
    66
Updated on 23 September 2022
Investigator
Francesca Falzarano
Primary Contact
Online Study Center (online study) Contact
dementia
alzheimer's disease
Online studies
Accepts healthy volunteers

Summary

Researchers at Weill Cornell Medicine are studying the psychosocial well-being, needs, and resource/service use among primary dementia caregivers. Primary caregivers are family and/or friends who provide a majority of the care required for an individual with Alzheimer’s disease/dementia. The goal of the study is to better understand the psychosocial needs of caregivers and examine the types of resources and support services that would be most beneficial to promote the well-being of caregivers. Findings from this study will be used to develop programs designed to alleviate stress and enhance well-being in dementia caregivers. The study will consist of a 20–30-minute online survey with an optional 30-45 phone interview. You may participate via telephone, or using Zoom videoconferencing. Participants will be compensated with $20 upon completion of the online interview, and $40 for the telephone portion.

Description

Researchers at Weill Cornell Medicine are conducting a research study examining well-being and resource use in dementia caregivers. The aim of this study is to identify and examine the needs of caregivers, and to identify the types of resources and support services that would be most beneficial to promote psychological well-being. To be eligible to participate, individuals must be a primary caregiver for a loved one with dementia living in the community and be at least 18 years of age. Eligible participants will be asked to complete an online survey lasting 20-30 minutes. Then, participants will be given the option to participate in a follow-up phone interview with a member of our research staff. This interview will take approximately 45-60 minutes and can be completed telephone, or Zoom videoconferencing. Participants will be asked to answer some questions about demographic characteristics, care responsibilities, and challenges experienced. Then, participants will be asked to answer some questions about use of community resources, barriers to accessing and using resources, and suggestions for resources that they would be interested in using in the future based on personal needs. Participation is completely voluntary. Participants will receive a stipend of $20 for their completed online survey. Participants who choose to take part in the open-ended interview will be compensated with another $40. This will be paid in the form of a ClinCard.  ClinCard can be used as a credit or debit card and funds will be available to you within 5 business days after study completion. If you are interested in taking part in this study or world like additional information, please contact at theENRICHlab@gmail.com or Dr. Francesca Falzarano at fbf4001@med.cornell.edu or call 646-962-7155.

Details
Condition Dementia, Alzheimer's Disease, Caregiver
Clinical Study IdentifierTX305294
Last Modified on23 September 2022

Eligibility

Yes No Not Sure

Inclusion Criteria

Provides 50% or more of care for a person with dementia
Is at least 18-years-old
The person with dementia resides in the community

Exclusion Criteria

Does not provide primary care for a person with dementia
participant is under 18 years-old
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Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.

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If you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.

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Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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