Medication Adherence in Patients With Sarcoidosis (MAPS)

  • End date
    Aug 31, 2025
  • participants needed
  • sponsor
    Johns Hopkins University
Updated on 10 July 2022


The goal of the study is to look at the relationship between how individuals with Sarcoidosis take the sarcoidosis medicines and how it affects the disease, to evaluate any factors that may make individuals not want to take the medicines, and to develop and refine ways to help support individuals with Sarcoidosis especially when it comes to the medicines. The overall hypothesis is higher medication adherence will be associated with better clinical outcomes in sarcoidosis. The investigators will enroll 150 patients with biopsy proven pulmonary sarcoidosis for at least one year who are on any oral treatment regimen for at least six months into a 12-month longitudinal study.

Condition Medication Adherence, Sarcoidosis
Clinical Study IdentifierNCT05438095
SponsorJohns Hopkins University
Last Modified on10 July 2022


Yes No Not Sure

Inclusion Criteria

At least 18 years of age
Physician diagnosis of Sarcoidosis
Biopsy proven pulmonary involvement of Sarcoidosis
On oral Sarcoidosis medications for at least 6 months
Permanently reside in Maryland or D.C
Fully vaccinated against COVID-19

Exclusion Criteria

Non-english speaking
Unable to provide consent
Unable to participate in orally administered questionnaires
Clear my responses

How to participate?

Step 1 Connect with a study center
What happens next?
  • You can expect the study team to contact you via email or phone in the next few days.
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Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.

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If you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.

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Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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