Caregiver Burden and Adaptation of Dementia Relatives During COVID-19

  • STATUS
    Recruiting
  • End date
    Dec 31, 2022
Updated on 23 September 2022
Investigator
MARYAM OMAR
Primary Contact
BINGHAMTON UNIVERSITY (online study) Contact
Online studies
Accepts healthy volunteers

Summary

This mixed-method study aims to explore the burden level among informal caregivers of relatives with dementia during the COVID-19 pandemic and discover their adaptation methods. With this in mind, the objectives of this study are: (a) to add to nursing knowledge about the nature and levels of burden among caregivers of relatives with dementia before and during the COVID-19 pandemic, (b) to gain a better understanding of the contextual factors of caring for dementia relative during the COVID-19 pandemic and their effects, and (c) to identify adaptation methods utilized by caregivers of those with dementia during the COVID-19 pandemic and their usefulness. Convenience sampling will be used to recruit participants in this study. Participants will be recruited from local healthcare institutions and the community. The study will be in the form of a survey questionnaire to be filled by relatives of individuals diagnosed with dementia.

Website:

Description

Online recruitment process: 1- The electronic survey flyer form will be uploaded on caregiver support group websites, Facebook, and other social media sites. 2- The candidate participants will be asked to click the survey link (attached to the study flyer) to access the detailed study material, including the study's description, aim, and qualification criteria. 3- The first section of the online survey will reinforce the study qualification criteria by asking candidate participants if they are : > 18 years of age or older > able to read and write English > a caregiver of a relative with a confirmed dementia diagnosis before and during the COVID-19 pandemic All three questions are mandatory and the candidate cannot skip them. If the answer to any of these questions is "No," a “thank you” statement will appear on the screen, and no further action will be taken as the individual will not be qualified for the study. If all answers to the first survey section are "Yes," the candidate participants will proceed to the consent process section. Public/community recruitment process: 1- Study flyers will be posted on openly available advertisement spaces at local community gathering spaces/ sittings, e.g., Malls, grocery stores, religious sittings (Islamic centers and churches), gyms, etc. 2- The candidate participants will be asked to scan the QR code (attached to the study flyer) on their smartphone to access the study material as described previously in section (3). Consent Process: If all answers to the first survey section are "Yes,": 1- An informed consent section will appear on the screen, which includes: > a concise description and aim of the study > a confidential statement regarding participant information and identity > participant’s rights and options 2-At the end of this section, the candidate participants will be given two options: a- if they are willing to participate in this study, they have to choose the "Accept" option, which is an agreement for participating and waiving their signature for their consent. b- if they are not willing to participate in this study, they have to choose the "Denial" option, which is a refusal to participate. Then a “thank you” statement will appear on the screen, and no further action will be taken as the candidate participant denies participation in the study.

Details
Condition Dementia, Caregiver
Clinical Study IdentifierTX299830
Last Modified on23 September 2022

Eligibility

Yes No Not Sure

Inclusion Criteria

must be a caregiver of a relative with a confirmed dementia diagnosis before and during the COVID-19 pandemic
must be 18 years of age or older
must be able to read and write English

Exclusion Criteria

people who did not speak or write English
people who were not interested in the study
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If you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.

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Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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