Supporting Latino families with dementia via text messages and phone calls

  • STATUS
    Recruiting
  • End date
    Jan 31, 2025
  • participants needed
    100
  • sponsor
    University of Kansas Medical Center
Updated on 1 November 2022
Investigator
Jaime Perales Puchalt, PhD, MPH
Primary Contact
University of Kansas Medical Center (online study) Contact
cognitive impairment
dementia
mild cognitive impairment
Online studies
Accepts healthy volunteers

Summary

English: Alianza Latina is a study to support Latinos with dementia and their family caregivers through personalized phone calls and text messages at NO COST. Family members will learn to care for themselves and their loved one with dementia. Participation is fully remote (calls and messages) and is open to families living in the US and Puerto Rico.  
 
Español: Alianza Latina es un estudio enfocado en hispanos y latinos que ofrece apoyo a personas con Alzheimer y otras demencias y a sus familiares a través de mensajes de texto y llamadas telefónicas sin NINGÚN COSTO. Los familiares aprenderán a cuidarse a sí mismos y a su ser querido con demencia. La participación es totalmente remota (llamadas y mensajes) y está abierta a familias de cualquier zona de los Estados Unidos y Puerto Rico.  

Description

English: Dementia has an enormous health and financial impact on individuals, families and the society as a whole. Dementia care can optimize the prognosis for patients and improve their families’ lives. Latinos experience substantial disparities in dementia care compared to their non-Latino white peers, putting them at an increased risk for steeper cognitive decline, morbidity, mortality and caregiver burden.
This project will address this research gap testing the feasibility and acceptability of Alianza Latina, a dementia care program to reduce disparities experienced by Latinos. Alianza Latina is a study to support Latinos with dementia and their family caregivers through personalized phone calls and text messages at NO COST. Family members will learn to care for themselves and their loved one with dementia. Everyone enrolled will receive Alianza Latina. The program will be preceded by a brief assessment at baseline and another one at 6 months (end of program). Family caregivers will participate in all assessments, text messaging and phone calls. If able, people will dementia can also participate in assessments and phone calls.
 
Español: La demencia tiene un enorme impacto sanitario y económico en las personas, sus familias y la sociedad en general. Una atención óptima puede mejorar el pronóstico para los pacientes y mejorar la vida de sus familias. Los latinos reciben peor calidad en la atención de demencia en comparación con los blancos no latinos, lo que los pone en un mayor riesgo de empeoramiento de su memoria, enfermedad, mortalidad y carga para sus cuidadores.
Este proyecto examinará la viabilidad y aceptabilidad de Alianza Latina, un programa de atención a la demencia para reducir las desigualdades que experimentan los latinos. Alianza Latina es un estudio enfocado en hispanos y latinos que ofrece apoyo a personas con Alzheimer y otras demencias y a sus familiares a través de mensajes de texto y llamadas telefónicas sin NINGÚN COSTO. Los familiares aprenderán a cuidarse a sí mismos y a su ser querido con demencia. Todas las personas que participen en el estudio recibirán Alianza Latina. Antes del programa se hará una evaluación breve que se repetirá a los 6 meses (final del programa). Los familiares participarán en todas las evaluaciones, mensajes de texto y llamadas. Si son capaces, las personas con demencia también pueden participar en las llamadas y evaluaciones.  
 

Details
Condition Dementia, Healthy Volunteer, Alzheimer's Disease
Treatment Alianza Latina
Clinical Study IdentifierNCT04418232
SponsorUniversity of Kansas Medical Center
Last Modified on1 November 2022

Eligibility

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If you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.

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Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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