Adaptation of an intervention for caregivers of Native Hawaiians with ADRD

  • STATUS
    Not Recruiting
  • End date
    Dec 31, 2024
Updated on 8 August 2022
dementia
alzheimer's disease
Online studies
Accepts healthy volunteers

Summary

We will work with family caregivers of Native Hawaiians with ADRD to tailor an online intervention. We will invite caregivers of Native Hawaiian adults with ADRD to participate in focus groups to better understand Hawaiian values in caregiving, review an online caregiving intervention, and suggest changes to align with Hawaiian culture. We will then pilot test the adapted intervention with caregivers of Native Hawaiians with ADRD and evaluate whether participants enjoy the intervention, practice skills learned in the intervention, and if the intervention improved caregiver health. Developing a culturally tailored intervention that is available online will make it possible to reach – and benefit – a large number of caregivers of Native Hawaiians with ADRD, many of whom live across the US, away from their homeland.

Description

We propose to culturally adapt Tele-Savvy, an online, evidence-based psychoeducational intervention, with family caregivers of Native Hawaiians with ADRD. Using a community-engaged approach, we will recruit 30 caregivers who have provided care to Native Hawaiian adults with ADRD to participate in focus groups in 2022-2023. Focus groups will explore cultural values related to caregiving and recommend cultural adaptations to the intervention. A subsample of focus group participants will review the cultural adaptations for credibility. During the second and third years of the study (2023-2025), we will then pilot the adapted intervention with 50 caregivers of Native Hawaiians with ADRD. To assess engagement, we will track attendance and participation, and at the end of each session, participants will complete surveys evaluating the cultural adaptations and their satisfaction with the session. At completion, caregivers will participate in an interview exploring the cultural adaptations and engagement with the intervention. We will use a convergent mixed method design and merge the data at analysis. To evaluate the intervention’s effectiveness, participants will complete surveys at baseline and completion assessing caregiver burden, depression, anxiety, self-rated health, and quality of life. T-tests will be used to assess changes from baseline to completion. The cultural adaptation of an online, evidence-based, psychoeducational intervention for family caregivers of Native Hawaiians with ADRD can be efficiently scaled up through existing resources – reaching numerous caregivers living outside of Hawai‘i who may not have had access to a culturally adapted program. We anticipate that the culturally adapted Tele-Savvy intervention will generate high levels of engagement and improve outcomes for family caregivers of Native Hawaiians with ADRD.

Details
Condition Alzheimer's Disease, Dementia, Caregiver
Clinical Study IdentifierTX299052
Last Modified on8 August 2022

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