Sickle Cell Disease Study: Own Your Health, Share Your Story with PicnicHealth

  • participants needed
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Updated on 27 October 2022
Online studies


Get all of your medical records in one secure account and contribute to important real-world Sickle Cell research with PicnicHealth. If you have Sickle Cell, you get $50 for signing up and a free lifetime access to your medical records.
Visit this link to learn more and sign up. Email for any questions. 


Join the community to change what we know about Sickle Cell Disease.
More than anything, researchers need data – lots of data – from actual Sickle Cell patients to identify patterns and find answers. Your unique medical history could help researchers answer:
·        How can we help Sickle Cell patients minimize symptoms and move into remission faster?
·        Are there ways to lessen the impact that Sickle Cell has on a patient’s daily life?
·        Can real world data help us predict what triggers Sickle Cell symptoms?
Get your medical records organized via PicnicHealth
PicnicHealth collects and gives you access to all your medical records from all of your doctors, all in one place while also giving you an opportunity to contribute your data anonymously to research. Sign up takes 5 minutes, you get $50, and you get this tool that collects and organizes all of your medical record info into a digital profile. You can share this with doctors or even pull the info up on your phone if you find yourself in the ER and need to show your history of Sickle Cell.
Hear from a real Sickle Cell patient below on how PicnicHealth has helped her:
“Before PicnicHealth, I was restricted to only one hospital during a medical emergency. As a Sickle Cell patient, it is easy to identify a lack of care continuity among healthcare systems. If I had a medical emergency outside of my service provider, I experienced extended wait times while explaining my condition and recommending treatments. Now with PicnicHealth, all of my data is located in my cellular device. I can hold the power in the palm of my hand.”
- Dima | Sickle Cell Patient

Visit this link to learn more and sign up. Email with any questions or if you need help signing up.

Condition Sickle Cell Disease
Clinical Study IdentifierTX299019
Last Modified on27 October 2022


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Inclusion Criteria

You (or a loved one) have been diagnosed with Sickle Cell Disease
You (or a loved one) have received medical care in the US
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How to participate?

Step 1 Connect with a study center
What happens next?
  • You can expect the study team to contact you via email or phone in the next few days.
  • Sign up as volunteer  to help accelerate the development of new treatments and to get notified about similar trials.

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Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.

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If you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.

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Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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