China Adrenal Disease Registry (CASE)

  • STATUS
    Recruiting
  • End date
    Apr 30, 2026
  • participants needed
    2000
  • sponsor
    Shanghai Jiao Tong University School of Medicine
Updated on 23 March 2022
adrenaline
pheochromocytoma
adrenal pheochromocytoma

Summary

Epidemiologic studies have revealed a tremendous increase in the prevalence of adrenal associated disease and related mortality worldwide. In order to meet all the therapeutic challenges in adrenal disease in China, CASE was founded in 2020. The objective of CASE is to launch an adrenal disease management model based on the Internet health information platform which allows the application and evaluation of adrenal disease treatment strategies at multiple centers. The proprietary electronic medical database will help the dynamic big-data analysis in epidemiology of adrenal disease, diagnosis, and treatment.

Description

In order to meet all the challenges in the diagnosis and treatment of adrenal diseases in China, CASE was founded in 2020. With advanced medical equipment and Internet of Things (IoT) technology, CASE is committed to creating an online and offline integrated solution for adrenal disease, and for the entire spectrum of adrenal disease, to achieve a more convenient and precise model of care for patients, aiming to establish a platform with diagnosis and treatment of adrenal disease and their long-term follow-up. It allows the application and evaluation of treatment strategies at these centers.

Details
Condition Cushing Syndrome, Aldosteronism, Hypoadrenalism, Congenital Adrenal Hyperplasia, Adrenal Adenoma, Adrenal Incidentaloma, Adrenal Carcinoma, Pheochromocytoma
Clinical Study IdentifierNCT04890444
SponsorShanghai Jiao Tong University School of Medicine
Last Modified on23 March 2022

Eligibility

Yes No Not Sure

Inclusion Criteria

Age ≥ 16 years old and ≤ 75 years
Patients diagnosed with adrenal associated diseases, including cushing syndrome, primary aldosteronism, primary hypoadrenalism, congenital adrenal hyperplasia and adrenal adenomas, incidentalomas, and carcinomas, pheochromocytoma, etc
Provide written informed consent
Satisfactory compliance

Exclusion Criteria

Patients with significantly reduced life expectancy (less than 2 years)
With Drug abuse
With AIDS or syphilis or infectious diseases such as viral tuberculosis in active phase at enrollment
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Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.

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If you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.

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Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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