Connection for Latinos Caring for a Family Member With Dementia

  • STATUS
    Recruiting
Updated on 30 June 2022
Investigator
Caroline Silva, PhD
Primary Contact
University of Rochester Medical Center (online study) Contact
Online studies
Accepts healthy volunteers

Summary

The Healthy Aging Research Program (HARP) Connection for Latinos Caring for a Family Member with Dementia project is seeking Hispanic/Latino participants who are at least 40 years old and currently provide or previously provided care and support to a loved one with dementia. The purpose of the HARP Connection for Latinos project is to learn how to help Hispanic/Latino adults who are caring for a loved one with dementia improve their social relationships and supports. The project involves two research interviews conducted remotely via phone and/or Zoom in English or Spanish. 

El proyecto Conexión para Latinos que Cuidan a un Familiar con Demencia del Healthy Aging Research Program (HARP) está buscando participantes hispanos/latinos que tengan al menos 40 años y que han cuidado o están cuidando a un ser querido con demencia. El propósito del proyecto HARP Conexión para Latinos es aprender cómo ayudar a los adultos hispanos/latinos que cuidan a un ser querido con demencia a mejorar sus relaciones sociales y apoyos. El proyecto consiste en dos entrevistas realizadas de forma remota por teléfono y / o Zoom en inglés o español.

Description

The purpose of this research study is to culturally adapt a personalized intervention (Connect for Caregivers) for Hispanic/Latino caring for a loved one with significant memory problems, including those who speak Spanish. Connect for Caregivers is designed to help Hispanics/Latinos caring for a loved one with significant memory problems in their own unique context to: 1.) understand the importance of social connections for their own health and well-being, 2.) learn to become aware of their own personal barriers to social connections, and 3.) increase their knowledge of local resources for promoting social connections. We will adapt Connect for Caregivers, including translating it into Spanish, following a specific adaptation framework and use a sequential exploratory (mixed methods) study design to identify culturally specific barriers to connectedness for Hispanic/Latino caregivers and provide an initial feasibility/acceptability test of this intervention.

Details
Condition Dementia, Healthy Volunteer
Clinical Study IdentifierTX290433
Last Modified on30 June 2022

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