Brief Survey on Dementia Family Caregiver Experiences

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  • sponsor
    Dartmouth College
Updated on 10 November 2021
Alison Zeng
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Dartmouth College (online study) Contact
Online studies
Accepts healthy volunteers


This study aims to compare the psychological effects of caregiving on Chinese American and non-Chinese American dementia caregivers. It involves a brief survey assessing experiences of grief, coping, and stigma.


The responsibility of caring for a dementia patient can have adverse effects on the family caregiver’s psychological well-being as well as the quality of care that the patient receives. While the experiences of White caregivers from Western cultures have been well studied, there has been a lack of research on other culturally diverse groups. Specifically, research on Chinese American immigrant dementia caregivers is very sparse, which is concerning considering that Asian Americans are the fastest growing ethnic group in the United States. In order to effectively address the impact of caregiving on Chinese Americans, it is necessary to have a complete and comprehensive understanding of their experiences with it first. Thus, this study will examine and compare the psychological effects of family caregiving on Chinese American dementia caregivers to non-Chinese American dementia caregivers. The study aims to survey, either online, over the phone, or in person, Chinese American dementia caregivers, and non-Chinese American dementia caregivers for comparison. The survey will assess cultural and ethnic variations in attitudes and experiences with caregiving, including the participant’s experiences of grief, coping mechanisms, and perceptions of stigma.

Condition Caregiver, Healthy Volunteers, Dementia
Clinical Study IdentifierTX287037
SponsorDartmouth College
Last Modified on10 November 2021


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Inclusion Criteria

Must be a caregiver for a family member with dementia
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Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.

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If you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.

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Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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