Dementia Family Caregivers’ Pain Assessments and Associations with Caregiver and Patient Characteristics

  • days left to enroll
  • sponsor
    Vanderbilt Institute for Clinical and Translational Research and Vanderbilt University School of Nursing
Updated on 10 November 2021
Online studies
Accepts healthy volunteers


In this online study, family caregivers of people with dementia will be asked to complete a demographic survey, a survey about how they determine if the person with dementia is in pain, and 6 tools that help us learn more about the person with dementia and the family caregiver. Participation in this research study is voluntary. Participants who complete the study will be offered a $25 electronic gift card.

Link to survey:


Family caregivers of people living with dementia who meet criteria to be included in the study will complete a set of online surveys. The first survey provides some demographic information about the family caregiver and the person living with dementia. The family caregiver will then complete the Dementia Family Caregiver Pain Assessment Survey. After that, 6 tools will be completed that help us understand more about the family caregiver and the person living with dementia. These tools are: Quick Dementia Rating System, Short Form of the Informant Questionnaire on Cognitive Decline in the Elderly, Cohen Mansfield Agitation Inventory, Revised Scale for Caregiving Self Efficacy, Center for Epidemiologic Studies Depression Scale, and the Health Literacy Skills Instrument Short Form. At the completion of the study activities, participants will be able to fill out a form that provides us information to offer them a $25 electronic gift card.

Condition Vascular Dementia, Lewy Body Dementia, Frontotemporal Dementia, Dementia, Mild Cognitive Impairment, Caregiver, Alzheimer’s Disease
Clinical Study IdentifierTX287036
SponsorVanderbilt Institute for Clinical and Translational Research and Vanderbilt University School of Nursing
Last Modified on10 November 2021


Yes No Not Sure

Inclusion Criteria

age 18 or older
living in the United States
being an unpaid family caregiver of a person with dementia not living in a nursing facility
have known the person with dementia at least 10 years
have at least weekly contact with the person with dementia

Exclusion Criteria

the person with dementia has not been diagnosed with dementia by a licensed healthcare provider
the person with dementia has Huntington’s disease, Parkinson’s disease, schizophrenia, bipolar disorder, deafness, or intellectual disability
another family caregiver for the same person with dementia has already completed the study
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Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.

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If you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.

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Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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