The Caregiver's Voice Study

  • STATUS
    Recruiting
  • sponsor
    National Institute of Health
Updated on 23 September 2022
Online studies
Accepts healthy volunteers

Summary

There is limited research on the experiences of Hispanic and Latino/a/x people who care for a person with difficulty with memory or thinking abilities. The primary aim of this research is to better understand the experiences, values, and preferences of Hispanic and Latino/a/x caregivers, and the decisions that caregivers make.

Description

We are recruiting Hispanic and Latino dementia caregivers to take part in online focus groups to discuss their experiences with caregiving. This project is funded through the ECHAR Network (https://www.echarnetwork.com/), whose goal is to increase the representation of Hispanics and Latinos in dementia research. The long-term goal of this project is to create customized support material for Hispanic and Latino/a caregivers making difficult decisions about care for their loved ones.

Participation includes:

1. Completing a 5-minute Eligibility Survey
2. A 10-minute Phone Survey
3. A 2-hour Group Conversation
a. It will take place online with 2-4 other people who are participating in the study.
b. It will be audio- and video-recorded through a secure University of Houston Zoom account.

Participants will receive a $50 Amazon e-gift card to compensate their time (about 2-2.5 hours).

Details
Condition Alzheimer's Disease, Healthy Volunteer, Caregiver, Dementia
Clinical Study IdentifierTX287035
SponsorNational Institute of Health
Last Modified on23 September 2022

Eligibility

Yes No Not Sure

Inclusion Criteria

Be 18 years or older
identify as Hispanic or Latino/a/x
be a current or past caregiver for someone with difficulties with memory or thinking abilities
Clear my responses

How to participate?

Step 1 Connect with a study center
What happens next?
  • You can expect the study team to contact you via email or phone in the next few days.
  • Sign up as volunteer  to help accelerate the development of new treatments and to get notified about similar trials.

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Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.

Learn more

If you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.

Learn more

Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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