Genetic Testing for Common Disorders: Learning from the Experiences of Individuals who were Tested to Determine their Genetic Risk for Alzheimer’s Disease

Updated on 23 September 2022
Online studies
Accepts healthy volunteers


This study is looking for people who have the APOE-e4 gene, which is associated with a higher risk for developing Alzheimer’s disease. The study is interested in learning about participants’ experiences.

IMPORTANT: This communication is meant only to make you aware of an opportunity to participate in a research study. The Alzheimer’s Association cautions against routine genetic testing for Alzheimer’s disease risk. If you are concerned about Alzheimer’s disease or memory changes in yourself or a loved one, the Alzheimer’s Association encourages you to have a frank conversation with your healthcare provider. You can view our full statement on genetic testing at  this link: 


Study schedule:
-You will have an interview by telephone. It will take 30-60 minutes.

Study activities may include:
-Completing a telephone interview.

Treatment or experiment details:
-The topics for the interview will be about your experiences in having genetic testing. The interviewer will ask about the short-term and long-term effects of learning that you have the APOE-e4 gene. The interviewer will ask you for suggestions for improving the genetic-testing process itself.
-There is no treatment being tested in this study.

Condition Alzheimer's Disease, Healthy Volunteers
Clinical Study IdentifierTX284499
Last Modified on23 September 2022


Yes No Not Sure

Inclusion Criteria

Age 21 or older
You have had genetic testing for Alzheimer’s
The results of the genetic testing showed that you have the APOE-e4 gene
Clear my responses

How to participate?

Step 1 Connect with a study center
What happens next?
  • You can expect the study team to contact you via email or phone in the next few days.
  • Sign up as volunteer  to help accelerate the development of new treatments and to get notified about similar trials.

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Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.

Learn more

If you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.

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Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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