Last updated on January 2019

Mucopolysaccharidosis (MPS) VI Clinical Surveillance Program (CSP)


Brief description of study

The objectives of this program are: to further characterize the natural progression of MPS VI disease; to generate and disseminate information on the care and management of MPS VI patients to clinical and medical professionals; to provide a resource to physicians and patients by providing information for optimizing patient care based on aggregate data; to characterize the clinical response to long-term Naglazyme (galsulfase) treatment; to further characterize the long-term safety of Naglazyme treatment.

Clinical Study Identifier: NCT00214773

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Recruitment Status: Open


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