RSSearch Patient Registry-Long Term Study of Use of SRS/SBRT

  • STATUS
    Recruiting
  • End date
    Dec 30, 2025
  • participants needed
    50000
  • sponsor
    The Radiosurgery Society
Updated on 30 July 2021
stereotactic body radiation therapy
malignant tumors
stereotactic body radiotherapy

Summary

The RSSearch Registry is an international multi-year database designed to track SRS/SBRT (Stereotactic Radiosurgery/Stereotactic Body Radiation Therapy) utilization, treatment practices and outcomes to help determine, over time, the most effective use of these systems in management of patients with life threatening tumors and other diseases. (This study was formally called ReCKord and included the CyberKnife only; The ReCKord study continues as a CyberKnife subset of RSSearch.)

Description

The Registry is designed to help SRS/SBRT (Stereotactic Radiosurgery/Stereotactic Body Radiation Therapy) users to understand utilization of and key treatment outcomes for these treatment approaches. Some of the objectives include:

Allow participants to record information about usage of SRS/SBRT in everyday practice, including patient characteristics and disease information, treatment plans and outcomes Provide participants with ready access to data for publication of their own experience and as a tool for establishing collaborations with other participating sites Facilitate quality improvement efforts for individual treatment providers Understand the effectiveness of different treatment plans for different types of lesions, diseases and treatments

The Registry tracks select outcomes for each condition treated by SRS/SBRT (for example, PSA for prostate cancer); the Registry also provides individual participants the ability to add additional outcomes for each and any condition of specific interest to their institutions.

The Registry is hosted by Vision Tree, Inc who is an independent vendor of electronic registries; they are responsible for HIPAA compliance, including all security mechanisms.

Patients will be enrolled prospectively. Some retrospective patient data is likely to be included in order to capture both short and longer term outcomes data.

Details
Condition Ewing's Family Tumors, Neoplasms, Cancer/Tumors, Cancer, Arteriovenous Malformation of Central Nervous System, Trigeminal Neuralgia, Cancer (Pediatric)
Treatment SRS/SBRT
Clinical Study IdentifierNCT01885299
SponsorThe Radiosurgery Society
Last Modified on30 July 2021

Eligibility

Yes No Not Sure

Inclusion Criteria

Diagnosis of benign or malignant tumors or other conditions deemed treatable by stereotactic radiosurgery or stereotactic body radiotherapy
Willingness to sign an Informed Consent Document or verbally agree to participation

Exclusion Criteria

There are no specific exclusion criteria, but patients who are unwilling to sign the ICD or who decline participation will not be included
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How to participate?

Step 1 Connect with a study center
What happens next?
  • You can expect the study team to contact you via email or phone in the next few days.
  • Sign up as volunteer to help accelerate the development of new treatments and to get notified about similar trials.

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Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.

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If you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.

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Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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