Defining a Standard Set of Value-Based Patient-Centered Outcomes for Endometriosis

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  • participants needed
  • sponsor
    One Clinic
Updated on 29 May 2023


Endometriosis is a chronic disease that affects one out of 10 women. Endometriosis care is full of variation. Recommendations for optimal management vary between clinician and centers. One way of dealing with this unwanted variation is the shift towards a value -based endometriosis care. Value-based healthcare (VBHC) is a strategy focused on the optimization of the balance between outcomes that are important to patients and cost to achieve these outcomes. To do so, for a given condition it is important to define a standardized set of outcomes metrics allowing quality of care monitoring and comparison in order to optimize clinical practices and patient pathways. A common set of outcomes combining clinical outcomes (Clinical Reported Outcome Measures, CROMs) as well as quality of life and functional recovery indicators through Patient Reported Outcome Measures (PROMs). Different standardized data sets have already been developed to measure outcomes in other pathologies, however a standardized set of outcome measurements have not yet been determined for endometriosis. The objective of this study is to determine a standard set of outcome measurements for endometriosis.

Condition Female Genital Diseases, Gynecological Infections, Endometriosis
Treatment Delphi Questionnaire
Clinical Study IdentifierNCT04820582
SponsorOne Clinic
Last Modified on29 May 2023

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