Pulmonary Hypertension Biorepository and Registry

  • End date
    Jul 31, 2026
  • participants needed
  • sponsor
    University of Kansas Medical Center
Updated on 10 June 2021
right heart catheterization


Establish a pulmonary hypertension registry and biorepository to lead towards a further understanding of the disease.


The aim of this project will be to establish a broad and wide-ranging registry and biorepository of blood samples from patients with pulmonary hypertension, including all WHO groups I-V to be used for future research in these areas. This will be both a retrospective and prospective project. The registry and biorepository will be utilized to study and grow our knowledge of the cellular mechanisms and mediators of the disease and, in turn, contribute to advancements in treatment.

Condition Surviving Abuse, Indikation: Diabetes - Typ II, Joint Injuries, Cancer Treatment, Pulmonary Hypertension Due to Lung Diseases and Hypoxia, Pulmonary Hypertension Due to Left Heart Disease, Myopic Macular Degeneration, idiopathic pulmonary hypertension, Stasis Dermatitis, Catheter Complications, Mental Disability, Severe Premenstrual Symptom, Infantile Fibrosarcoma, Complicated Grief, Memory Problems, Pulmonary Hypertension, Primary, 3, CTEPH, Pseudobulbar Affect, Late Infantile Neuronal Ceroid Lipfuscinsosis, Pulmonary Arterial Hypertension, Anemic Cancer, Cancer Prevention, Chronic Pelvic Pain, Renal Anemia, Testotoxikose, thromboembolic pulmonary hypertension, Low Testosterone, Functional Dyspepsia, Gambling Problems, Abdominal Surgery, Primary Pulmonary Hypertension, Nerve Injury, Partial Medial Meniscectomy, Spinocerebellar Disorders, Primary Insulin Hypersecretion, Chronic Renal Anemia, Open Heart Surgery, Recurrent Pregnancy Loss, Pelvic Adhesions, Chronic Thromboembolic Pulmonary Hypertension, Pulmonary Hypertension, Primary, 4, Spine Athroplasty, Habit Reversal, Effects of Chemotherapy, Dental Filling, Pulmonary Hypertension, Serial Evaluation of Ductal Epithelium, Pulmonary Hypertension, Primary, 2
Clinical Study IdentifierNCT04808596
SponsorUniversity of Kansas Medical Center
Last Modified on10 June 2021


Yes No Not Sure

Inclusion Criteria

The participant is a patient at TUKHS or has agreed to participate in a study approved by the KUMC Human Research Protection Program (HRPP)
The participant has a diagnosis of pulmonary hypertension confirmed by right heart catheterization
Patient is 18 years of age or older

Exclusion Criteria

Participant declines to participate (living patients only)
Participant is unable to provide informed consent (living patients only)
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Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.

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If you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.

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Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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