Pulmonary Hypertension Biorepository and Registry

  • STATUS
    Recruiting
  • End date
    Jul 31, 2026
  • participants needed
    300
  • sponsor
    University of Kansas Medical Center
Updated on 10 June 2021
right heart catheterization

Summary

Establish a pulmonary hypertension registry and biorepository to lead towards a further understanding of the disease.

Description

The aim of this project will be to establish a broad and wide-ranging registry and biorepository of blood samples from patients with pulmonary hypertension, including all WHO groups I-V to be used for future research in these areas. This will be both a retrospective and prospective project. The registry and biorepository will be utilized to study and grow our knowledge of the cellular mechanisms and mediators of the disease and, in turn, contribute to advancements in treatment.

Details
Condition Pulmonary Hypertension, Pulmonary Arterial Hypertension, Chronic Thromboembolic Pulmonary Hypertension, Pulmonary Hypertension Due to Left Heart Disease, Primary Pulmonary Hypertension, CTEPH, Pulmonary Hypertension Due to Lung Diseases and Hypoxia, thromboembolic pulmonary hypertension, idiopathic pulmonary hypertension, Pulmonary Hypertension, Primary, 4, Pulmonary Hypertension, Primary, 2, Pulmonary Hypertension, Primary, 3
Clinical Study IdentifierNCT04808596
SponsorUniversity of Kansas Medical Center
Last Modified on10 June 2021

Eligibility

Yes No Not Sure

Inclusion Criteria

The participant is a patient at TUKHS or has agreed to participate in a study approved by the KUMC Human Research Protection Program (HRPP)
The participant has a diagnosis of pulmonary hypertension confirmed by right heart catheterization
Patient is 18 years of age or older

Exclusion Criteria

Participant declines to participate (living patients only)
Participant is unable to provide informed consent (living patients only)
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If you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.

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Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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