International Prospective Registry of Patients With Alpha Thalassemia (ATM Registry)
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- STATUS
- Recruiting
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- End date
- Jan 25, 2037
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- participants needed
- 500
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- sponsor
- University of California, San Francisco
Summary
This is an international prospective registry of patients with Alpha thalassemia to understand the natural history of the disease and the outcomes of fetal therapies, with the overall goal of improving the prenatal management of patients with Alpha thalassemia.
Description
The aim of this registry is to prospectively and retrospectively collect data on patients who are diagnosed with alpha thalassemia major and other alpha thalassemia mutations. Data collected will be used to:
- Identify patient outcomes of therapies.
- Improve clinical management of patients with ATM.
- Improve medical decision making.
- Improve quality of care.
Details
| Condition | Alpha-Thalassemia, Alpha Thalassemia Major, Alpha Thalassemia Minor |
|---|---|
| Clinical Study Identifier | NCT04872179 |
| Sponsor | University of California, San Francisco |
| Last Modified on | 25 October 2022 |
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